Table 1.
Basic characteristics of the pro-WELL baseline population
| Caregiving partners | Persons with SCI | |
|---|---|---|
| Total [Missing values: SCI; partner] | ||
| Sociodemographic characteristics | ||
| Continuous | Mean (SD) | Mean (SD) |
| Age (in years) | 50.7 (10.0) | 51.7 (9.4) |
| Net-equivalent household income (in CHF) [17;18] | 4333 (1560) | 4495 (1473) |
| Years of formal education [7;2] | 14.0 (3.2) | 13.8 (3.2) |
| Subjective social position (range 0–10) [5;4] | 6.0 (1.6) | 5.8 (1.8) |
| Duration of caregiving (in years) [7] | 18.8 (11.0) | – |
| Categorical | n (%, 95 CI) | n (%, 95 CI) |
| Female [0;0] | 86 (72.9, 64.0–80.2) | 36 (27.1, 19.8–35.9) |
| Financial strain [5;4] | 39 (34.5, 26.2–43.9) | 39 (34.5, 26.2–43.9) |
| Home ownership [2;7] | 79 (66.4, 58.2–74.6) | 81 (72.9, 63.8–80.5) |
| Paid employment [0;0] | 76 (53.3, 44.2–62.3) | 63 (64.4, 55.2–72.6) |
| Lesion characteristics of the care-receiver | n (%, 95 CI) | n (%, 95 CI) |
| Lesion severity [2] | ||
| Incomplete paraplegia | – | 36 (31.0, 23.2–40.1) |
| Complete paraplegia | – | 45 (38.8, 30.3–48.1) |
| Incomplete tetraplegia | – | 22 (19.0, 12.7–27.3) |
| Complete tetraplegia | – | 13 (11.2, 6.6–18.5) |
| Aetiology [3] | ||
| Traumatic | – | 97 (84.3, 76.4–90.0) |
| Non-traumatic | – | 18 (15.7, 10.0–23.6) |
| Health status | Mean (SD) | Mean (SD) |
| Secondary health conditions (SCI-SCS, range 0–24) [0] | – | 10.8 (5.3) |
| Comorbidities (SCQ, range 0–5) [0;0] | 0.8 (1.1) | 0.9 (1.0) |
| Psychosocial resources | Mean (SD) | Mean (SD) |
| Quality of relationship (QRI, range 0–24) [3;2] | 20.3 (3.6) | 21.0 (2.9) |
| Loneliness (UCLA-SF, range 0–6) [3;2] | 0.7 (1.3) | 1.1 (1.5) |
| Self-efficacy [3;4] | 15.5 (2.4) | 15.0 (2.7) |
| Unfulfilled support needs | n (%, 95 CI) | |
| Wish for more support in caregiving (yes) [16] | 19 (16.2, 9.5–23.0) | – |
| Caregiver burden | Mean (SD) | |
| Objective (duration of daily care in hours) [12] | 2.0 (3.5) | – |
| Subjective (ZBI-S, range 0–48) [5] | 7.4 (7.2) | – |
Abbreviations: CHF Swiss Francs, CI Confidence Interval, QRI Quality of Relationship Inventory, SCI Spinal Cord Injury, SCI-SCS Spinal Cord Injury-Secondary Conditions Scale, SCQ Self-Administered Comorbidity Questionnaire, SD Standard Deviation, UCLA-SF UCLA Loneliness Scale-short form, ZBI-S Zarit Burden Interview-short form