Table 1.

Demographic data were collected from the caregiver participants.

Demographic traits		Valuesa
Individuals interviewed (number of families represented)		18 (14)
Relationship to child with OIb (N=18 caregivers), n
	Mother	11
	Father	5
	Other: legal guardian	2 (same family)
Language of interview (N=18 caregivers), n
	English	12
	French	6
Caregivers' median age in years (age range)		37.5 (24-57)
Caregiver’s sex (N=18 caregivers), n
	Female	13
	Male	5
Residential region (N=14 families), n
	Local (<2 hours’ drive from Montreal)	7
	Within Quebec, not local	1
	Other Canadian region	3
	International	3
Highest level of education (N=18 caregivers), n
	Some postsecondary (university or college)	5
	Received university or college diploma	11
	Postgraduate	2
Marital status (N=18 caregivers), n
	Married or common law	14
	Single (never married)	2
	Separated or divorced	2
Estimated family income (N=14 families), n (Can $)
	<$25,000	3
	$25,000-$50,000	1
	$50,000-$80,000	1
	>$80,000	7
	Do not know	1
	Prefer not to answer	1
Child’s OI type (N=14 families), n
	I	3
	III	4
	IV	6
	VI	1
Ages of children with OI (17 children with OI), n
	Baby (0-12 months)	2
	Toddler (13 months-3 years)	1
	Preschool (4-5 years)	1
	School aged (6-12 years)	11
	Teenager (13-18 years)	2
Family history of OI (N=14 families), n
	Yes	3
	No	11
Internet access at home (N=14 families), n
	Yes	14
	No	0
Comfort using the Internet (N=18 caregivers), n
	Very comfortable	14
	Somewhat comfortable	3
	Neutral	1
	Somewhat uncomfortable	0
	Uncomfortable	0
General thoughts on using the internet for OI care (N=18 caregivers), n
	Positive	14
	Neutral	2
	Negative	2

^aValues represent the number of individuals, unless otherwise indicated.

^bOI: osteogenesis imperfecta.