Table 4.

Counts and Frequencies of Parent Responses to T3 Follow-up Survey (N = 81).

Why did you allow your child to participate in our project?  I thought the study results could benefit other families in the future  I wanted a digital storyboard of my child  I thought it would help my child  Other	75 (92.6%) 38 (46.9%) 48 (59.3%) 2 (2.5%)
Why do you think your child wanted to participate?  He/she wanted to make something to share with someone special  He/she thought it would be a fun activity  Other	55 (67.9%) 58 (71.6%) 11 (13.6%)
How did your child complete the digital storyboard?  By him/herself  With assistance from someone  Other	52 (64.2%) 28 (34.6%) 1 (1.2%)
Since your child completed participation in our project, have you OR your child done anything with the digital storyboard?  We have watched the video again  We gave the video to someone special  We have never watched the video again  Other	56 (70.0%) 41 (51.3%) 13 (16.3%) 8 (10.0%)
How was/is the digital storyboard helpful to you?  Provides me emotional comfort  Is a coping strategy for me  The process facilitated communication between me and my child  Other  The digital storyboard was not helpful to me	50 (63.3%) 36 (45.6%) 57 (72.2%) 4 (5.1%) 4 (5.1%)
How was/is the digital storyboard helpful to your child  Helped him/her express their feelings  Helped my child feel better physically  Helped my child feel better emotionally  Helped my child feel better socially  Helped my child feel better spiritually  Helped him/her cope  Other  The digital storyboard was not helpful to my child.   Made me feel sad   Made my child feel sad   Other	70 (86.4%) 20 (24.7%) 48 (59.3%) 34 (42.0%) 31 (38.3%) 40 (49.4%) 5 (6.2%) 3 (3.7%) 0 (0.0%) 1 (1.2%) 2 (2.5%)