Table 1.
Intended variables for data collection
| Variable | Encounter and/or Intended Tool or Method (Ref.) | 1 – Adult with diabetes | 2 – Adult w/o diabetes | 3 – Child with diabetes | 4 – Child w/o diabetes |
|---|---|---|---|---|---|
| CHILDREN/YOUTH VARIABLES FOR ALL 5 DETERMINANTS OF HEALTH | |||||
| All variables in minors | NSCH: National Survey Children’s Health [13] | – | – | Par | Par |
| GENETIC INFLUENCES | |||||
| Biobank samples | |||||
| Blood | Plasma, serum, buffy coat collected via venous draw | Yes | Yes | Opt | Opt |
| Epithelial cells | Collected via cheek swab | Yes | Yes | Opt | Opt |
| Saliva | 2 ml saliva into vial collected via spitting into a cup | Yes | Yes | Opt | Opt |
| Microbiome | Stool sample collected at home and mailed to lab | Opt | Opt | Opt | Opt |
| BIOLOGICAL INFLUENCES | |||||
| Family medical history | HPA: Health Promotion Assessment | Yes | Yes | Par | Par |
| Physiological markers | |||||
| HbA1c | Blood draw and fingerstick | Yes | Yes | Opt | Opt |
| Metabolic panel | Blood draw and urinalysis | Yes | Yes | Opt | Opt |
| Lipid panel | Blood draw | Yes | Yes | Opt | Opt |
| Vital signs | |||||
| Body mass index (BMI) | HPA: Health Promotion Assessment | Yes | Yes | Yes | Yes |
| Waist circumference | HPA: Health Promotion Assessment | Yes | Yes | Yes | Yes |
| Blood pressure | HPA: Health Promotion Assessment | Yes | Yes | Yes | – |
| Heart rate and rhythm | HPA: Health Promotion Assessment | Yes | Yes | – | – |
| Foot screening | HPA: Health Promotion Assessment | Yes | – | Yes | – |
| Date of last dental exam | HPA: Health Promotion Assessment | Yes | Yes | Par | Par |
| Date of last eye exam | HPA: Health Promotion Assessment | Yes | – | Par | – |
| Neuropathy (Y/N) | HPA: Health Promotion Assessment | Yes | – | Par | – |
| Retinopathy (Y/N) | HPA: Health Promotion Assessment | Yes | – | Par | – |
| History | |||||
| Medical history | Medical history, including date of diabetes diagnosis | Yes | Yes | Par | Par |
| Medication history | Medical history and visual inspection of medications | Yes | Yes | Par | Par |
| Most recent flu shot | Intro. Interview | Yes | Yes | Par | Par |
| DM-related foot disease | Q-DFD: Quest. for Diabetes-Related Foot Disease [14] | Yes | – | – | – |
| Women only | |||||
| Menopausal status | HPA: Health Promotion Assessment | Yes | Yes | – | – |
| Pregnancy status | HPA: Health Promotion Assessment | Yes | Yes | – | – |
| Number of children | HPA: Health Promotion Assessment | Yes | Yes | – | – |
| Birthweights of children | HPA: Health Promotion Assessment | Yes | Yes | – | – |
| Type 1 DM in children | HPA: Health Promotion Assessment | Yes | Yes | – | – |
| Gestational DM | HPA: Health Promotion Assessment | Yes | Yes | – | – |
| PSYCHOLOGICAL INFLUENCES | |||||
| Quality of life | SF-12: Health Survey Short Form [15] | Yes | Yes | – | – |
| Adverse childhood events | ACES: Adverse Childhood Events Questionnaire [16] | Yes | Yes | – | – |
| Depression | PHQ-9: Patient Health Questionnaire [17] | Yes | Yes | – | – |
| Ethnic discrimination | PEDQ-CV: Perceived Ethnic Discrimination Quest [18]. | Yes | Yes | – | – |
| Spirituality | FACIT-Sp-12: Spiritual Well-Being Scale [19] | Yes | Yes | – | – |
| Diabetes risk perception | RPS-DD: Risk Perception Survey-Developing Diabetes [20] | – | Yes | – | – |
Abbreviations: DM Diabetes mellitus, HbA1c Hemoglobin A1c, Intro Introductory, Opt Optional, Par Participant