Table 1.

Demographic characteristics among US adults with ALS who responded to the National ALS Registry’s Clinical Survey Module (19 October 2010–31 December 2015).

Characteristic	Clinical survey participants		All Registry participantsa
	N = 1758	%	N = 6352	%
Age at diagnosis
18–39	76	4.3	408	6.4
40–49	247	14.1	981	15.5
50–59	511	29.1	1922	30.3
60–69	580	33	2033	32.1
70–79	288	16.4	869	13.7
80+	55	3.1	131	2
Missing	1	0	8	0.1
Gender
Male	1071	60.9	3841	60.5
Female	687	39.1	2511	39.5
Race
Nonwhite	78	4.5	293	4.6
White	1658	95.5	5809	91.5
Missing	22	1.3	250	3.9
Census region
Midwest	532	30.4	1790	28.2
South	578	33.1	2200	34.5
West	389	22.2	1357	21.4
East	242	13.8	957	15.1
Other/missing	17	0.1	48	0.8

^aRegistry enrollees who completed one or more of the 17 available surveys.