Table 1.
Characteristics of study participants
| AYA with cancer (n = 18) | ||
|---|---|---|
| Age: median (range) | At diagnosis | 19 (16–24) years |
| At interview | 20 (17–26) years | |
| Gender, male: n (%) | 14 (78%) | |
| Ethnicity: n (%) | White British | 14 (78%) |
| Non-white British | 2 (11%) | |
| White non-British | 2 (11%) | |
| Education/employment at diagnosis: n (%) | Employment / work-based training | 6 (33%) |
| School / college | 6 (33%) | |
| Undergraduate studies | 3 (17%) | |
| Not in education / employment | 3 (17%) | |
| Diagnosis: n (%)a | Bone sarcoma | 6 (33%) |
| Leukaemia | 4 (22%) | |
| Germ cell tumour | 3 (17%) | |
| Other sarcoma | 2 (11%) | |
| Lymphoma | 1 (6%) | |
| CNS tumour | 1 (6%) | |
| Melanoma | 1 (6%) | |
| Diagnostic type: n (%) | Primary cancer | 16 (89%) |
| Relapsed cancer | 2 (11%) | |
| Place of care: n (%)a | Adult hospital with AYA unit | 14 (78%) |
| Paediatric hospital with AYA unit | 3 (17%) | |
| Adult hospital without AYA unit | 1 (6%) | |
| Reported enrolment in a trial: n (%) | 5 (28%) | |
| Interviewed independently of caregiver(s): n (%) | 14 (78%) | |
| Caregivers (n = 15) | ||
| Relationship to AYA: n (%) | Mother | 11 (73%) |
| Father | 3 (20%) | |
| Partner | 1 (7%) | |
| Ethnicity: n (%) | White British | 14 (93%) |
| Non-white British | 1 (7%) | |
| Own occupation at AYA’s diagnosis: n (%) | Professional | 8 (53%) |
| Semi-professional / Skilled | 6 (40%) | |
| Unskilled | 1 (7%) | |
aPercentages do not sum to 100% due to rounding