Table 1.
Interview topic guide
| About the interviewee: | |
| Role/responsibilities, including clinical and other interests | |
| Contact with TYA patients | |
| Experiences of providing care to TYA | |
| If/how providing care to older adults (or children) is different | |
| Involvement with trials: | |
| Understanding of the term | |
| Experience of trials work | |
| Reasons for doing trials | |
| Views on costs and benefits of trials (to current and future patients, professionals, and organisations) | |
| Decision-making about whether to open any specific trial locally | |
| Processes for opening a trial locally | |
| Barriers and facilitators to timely opening of trials | |
| Scope for improving processes | |
| Recruiting TYA (and other) patients to trials open locally | |
| Experience of recruiting TYA (and other) patients | |
| Processes for identifying eligible patients | |
| Deciding whether or not to approach individual patients | |
| Who/what is involved in recruitment | |
| Issues, concerns, and/or challenges specific to TYA (in general and/or sub-groups) | |
| Referring TYA (and other) patients to trials open elsewhere | |
| Experience of referring TYA (and other) patients | |
| Processes for identifying eligible patients | |
| Deciding whether or not to approach individual patients | |
| Who/what is involved in referral | |
| Issues, concerns and/or challenges associated with referral to trials open elsewhere | |
| Issues, concerns and/or challenges specific to referring TYA to trials open elsewhere | |
| Increasing TYA participation in trials | |
| Explanations for variation (in levels of participation) between services and sub-specialisms | |
| How to promote trial participation by this age group | |
| Other issues or comments | |
| Changes in context and/or trials | |
| Emergent issues |