Table 3.

Online survey administered to pediatric patients who were seen at least once in an adult care setting. Survey is broken down into three timepoints; preparing for transition, transition, and adjusting to adult care

No.	Preparing for Transition
1	I was ready to transfer to adult care.
2	My parents were ready to transfer to adult care.
3	The transfer to adult care was announced in a timely manner.
4	The timing of the transfer was just about right.
5	I had a say in the timing of the transfer.
No.	Transition
1	There was good collaboration between pediatric and adult care.
2	I received enough information about the transfer to adult care.
3	I understood the roles of my adult care providers before the transition.
4	Meeting the adult care practitioner beforehand was useful.
5	I was well prepared for the transfer to adult care.
No.	Adjusting to Adult Care
1	I felt comfortable in the adult care environment.
2	I am happy with the care I receive in the adult care setting.
3	I was taken care of very well in the adult care setting.
4	When I first met my adult care provider, I knew exactly what was expected of me and what I could expect from him/her.
5	My new care provider was well informed about me and my condition.
6	I have confidence in my adult health care providers.
7	The members of the adult care staff were sensitive to my needs.
8	The way of working and dealings with patients in adult care are similar to what I was used to in pediatric care.
9	Treatment recommendations in the adult care setting are similar to those I used to receive in pediatric care.
10	I don’t really experience many differences between pediatric and adult care.
11	I can manage my medical care well on my own.
12	I felt comfortable navigating the first adult care appointment on my own.
13	I’m still struggling with being cared for in the adult environment.
14	I don’t understand how my medications relate to my treatment plan.
15	I understand how my current insurance coverage relates to my treatment plan.