Table 2.
Selected quotes from patient–caregiver interviews and nurse focus groups
Dyad perspectives | |||
---|---|---|---|
Topic | Theme | Quotes | |
Challenges and impact of stroke | Difficulties managing the uncertainty of the recovery process |
“The challenge right now is the unknown” “I have a fear of not being able to be the way I was, get back to where I was” |
|
Difficulties managing emotional distress | “Uncontrollable crying, depressed” | ||
Multiple sources of emotional distress | “I hate the idea that people now have to worry about me more than they once did” “Being in a hospital is very tiring” | ||
Coping with stroke | Coping strategies |
“I just have to take each day as it comes and keep a good attitude about it. I’m working on that” “I try to get in the moment” “I just focused on the positive and didn’t worry too much about what could have happened” |
|
Preferred structure for a resiliency intervention | Suggested topics |
“Learning more about the condition and research that is being done” “Adaptation would be good too… adaptive thinking” “Make sure you don’t have as much stress and, so, you can do normal living” |
|
Barriers to participation | “There’s so many other responsibilities and stresses to deal with that it makes it hard to, I’d say, commit with reliability” | ||
Nurse perspectives | |||
Topic | Quotes | ||
Recommendations |
“Staying in the present”‘ “Focusing on the now may keep you from worrying too much, but also you have to appreciate the things that make it better in the future” “Trying to support them and knowing that they’re still involved and supporting their loved one by taking care of themselves” |
||
Barriers to effective implementation | “We don’t have consistency aII the time, like you may work and not be back to work for 4 or 5 days” |