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. 2020 Jan 14;21:16. doi: 10.1186/s12882-020-1683-5

Table 2.

Table caption

Selected quotes Concern / Access type referenced
I'm “terrified because my interventions are so frequent” Durability / General
It is “always on my mind: will it last, will I run out of places to put an access?” Durability / General
“It was scary” having that (blood stream) infection Infections / CVC
You're “waiting for a miracle while it is maturing” Maturation / General
You “have to make sure that you maintain it and clean it to avoid infection” Infections / General
I worry about the skills of the techs, they're like an enemy to me Care at clinic / General
all nurses are different so you need to worry about who to go to and to trust Care at clinic / AVF
“those needles do not feel good” Pain / AVG
The “thrill will wake you up” Sleep / AVF
You can't wear nice clothes and it’s a bummer. No low cut tops Appearance / General
When I go to parties I don't want to answer the questions Social interactions / AVF
“A person once told me that I have the 'sign of the beast' on me” Social interactions / AVF
“I feel weird if I get touched.” Intimacy / AVF
I “did not like the way it felt when I went running” Recreation / CVC
“Clots and other interventions just take time, time away from family” Time burden / AVF
My access “makes it difficult to act as a parent sometimes” Family interaction / General