Table 3.
Domain | Specific Impact | Number of Mentions | Unique Contribution vs. Existing Dialysis Measures |
---|---|---|---|
ADLs / physical function | Housework other ADLs | 6 | Arm mobility;VA-specific attribution |
Showers / hygiene | 9 | Mobility related issues; VA-specific attribution | |
Emotional impact | Fear | 16 | Access-related infections; VA-specific attribution |
Worry / anxiety | 75 | Access-related durability; VA-specific attribution | |
Physical symptoms | Bleeding | 5 | VA-specific attribution |
Bruising / Swelling | 14 | VA-specific attribution | |
Cramping / Spasms | 4 | * | |
Numbness / tingling | 10 | * | |
Pain at home | 7 | * | |
Pain during dialysis | 6 | * | |
Pain on cannulation | 35 | VA-specific attribution; patient-centered term “needle-stick” | |
Sleep | Sleep problems | 8 | VA-specific attribution |
Social / Role Function | Appearance / clothing | 33 | Inability to wear nice clothes; VA-specific attribution |
Social avoidance/ awkwardness | 29 | Avoidance and perception of stigma; VA-specific attribution | |
Family impacts / play | 11 | Socializing, family relationships, hobbies; VA-specific attribution | |
Work | 5 | VA-specific attribution | |
Physical intimacy | 8 | VA-specific attribution | |
Recreation | 10 | VA-specific attribution | |
Time burden | 26 | VA-specific attribution | |
Healthcare interactions | Access-related self-care | 20 | Burden of self-care |
Vigilance in clinic | 29 | Burden of self-advocacy |