Table 2.

Details of participants invited to participate in the Delphi study

Number of Participants	Area of Expertise
6	Paediatricians with specialisations in: neurology, child development and education, rare diseases, drug advocacy, intensive care, palliative care and pain
5	Members of the allied paediatric health team including: physiotherapists, psychologists and a specialist professional nurse
2	Health economists
2	Public Health specialist