Skip to main content
. 2019 Dec 13;4:111. Originally published 2019 Jul 25. [Version 2] doi: 10.12688/wellcomeopenres.15354.2

Table 1. ‘Share your thoughts on health research’: survey questions.

Question
Number
Question Asked
1 What age are you?
2 What gender do you identify as?
3 Have you taken part in any of these health research studies? (Tick all that apply)
4 If asked by researchers at a University to take part in a health study like Generation Scotland, how would you answer?
5 If the study asked you to invite another member of your family to join too, would you be happy to do so?
6 If the study asked you to give details about your own health, personality, habits, and lifestyle, would you be happy to do so?
7 If the study asked to use blood samples left over from routine health tests, would you agree to that?
8 If the study involved genetic analysis, using DNA extracted from a saliva sample kit sent to your home, would you agree to
take part?
9 If the study involved analysis, using blood extracted from a finger prick kit sent to your home, would you agree to take part?
10 Children born in Scotland after 1965 have heel prick blood spots (Guthrie cards) taken to test for serious but treatable
conditions. The Guthrie cards have been kept in a safe place by the NHS. A study might ask for specific permission to use
these stored blood spots for research. Does this sound reasonable, whether or not your own Guthrie card has been stored?