Table 1. ‘Share your thoughts on health research’: survey questions.
Question
Number |
Question Asked |
---|---|
1 | What age are you? |
2 | What gender do you identify as? |
3 | Have you taken part in any of these health research studies? (Tick all that apply) |
4 | If asked by researchers at a University to take part in a health study like Generation Scotland, how would you answer? |
5 | If the study asked you to invite another member of your family to join too, would you be happy to do so? |
6 | If the study asked you to give details about your own health, personality, habits, and lifestyle, would you be happy to do so? |
7 | If the study asked to use blood samples left over from routine health tests, would you agree to that? |
8 | If the study involved genetic analysis, using DNA extracted from a saliva sample kit sent to your home, would you agree to
take part? |
9 | If the study involved analysis, using blood extracted from a finger prick kit sent to your home, would you agree to take part? |
10 | Children born in Scotland after 1965 have heel prick blood spots (Guthrie cards) taken to test for serious but treatable
conditions. The Guthrie cards have been kept in a safe place by the NHS. A study might ask for specific permission to use these stored blood spots for research. Does this sound reasonable, whether or not your own Guthrie card has been stored? |