Table 1.
Measures | Instrument | Mean/percentage | Range | Alpha |
---|---|---|---|---|
QoL | ||||
Time 1 | ||||
QoL total score—child report | PedsQL | 71.7 (12.9) | 35.9–98.9 | 0.84 |
QoL total score—parent report | PedsQL | 66.1 (14.2) | 27.2–97.8 | 0.87 |
Time 2 | ||||
QoL total score—child report | PedsQL | 74.8 (14.2) | 25.0–1.00 | 0.87 |
QoL total score—parent report | PedsQL | 72.9 (15.4) | 14.1–1.00 | 0.87 |
Child/adolescent psychopathology | ||||
Time 1 | ||||
Psychopathology—parent report | CBCL | 64.7 (28.1) | 6–137 | 0.90 |
Psychopathology—teacher report | TRF | 50.8 (31.9) | 3–147 | 0.95 |
Time 2 | ||||
Psychopathology—parent report | CBCL | 50.1 (28.1) | 2–142 | 0.95 |
Psychopathology—teacher report | TRF | 44.6 (29.3) | 4–144 | 0.97 |
Child factors | ||||
Intelligence | WISC-R | 96.4 (15.7) | 48–141 | |
Chronic physical disease (yes) | QuICCC | 9.2% | ||
Psychiatric diagnosis (yes) | DSM-IV CI | 80.1% | ||
Self-esteem | SPPC/SPPA | 3.1 (0.7) | 1.3–4.0 | 0.74/0.82 |
Social skills—parent report | SSRS | 41.7 (11.9) | 1–73 | 0.90 |
Social skills—teacher report | SSRS | 31.1 (11.1) | 5–57 | 0.91 |
Parent factors | ||||
Psychopathology mother | YASR | 9.9 (8.6) | 0–48 | 0.92 |
Psychiatric treatment mother (yes) | 35.0% | |||
Parenting stress mother | NPSI | 83.1 (26.7) | 26–137 | 0.95 |
Family/social network factors | ||||
Single parent family (yes) | 25.5% | |||
SESa | 69.3% | |||
Family functioning—clinical report | CAFAS | 53.8 (8.2) | 20–60 | 0.67 |
Family functioning—parent report | FAD | 3.1 (0.5) | 1.5–4 | 0.87 |
Social contacts family | HIESSQ | 3.0 (0.8) | 0.7–5 | 0.73 |
Social support—family | SSSC/SSSA | 0.7 (0.2) | 0–1 | 0.80/0.79 |
Social support—friends | SSSC/SSSA | 0.8 (0.2) | 0–1 | 0.76/0.82 |
Social support—classmates | SSSC/SSSA | 3.2 (0.7) | 1–4 | 0.71/0.68 |
Stressful life events | LEQ | 1.5 (1.3) | 0–6 |
aDichotomized variable: SES (low = 0 versus middle-to-high = 1). Alpha = Cronbach’s alpha