Table 3.

Likert questions about training for the management and knowledge of rare diseases.(Based in Esteban Bueno et al. 2015)

Questions	Hospital (n = 37) Mean (SD)	Primary care (n = 132) Mean (SD)	p-value
I consider that the medical training (clinical aspects) that I have received on rare diseases is adequate	2.29 (0.94)	1.72 (0.96)	0.001
I believe that the training I have received on the psychosocial impact of rare diseases is adequate	1.77 (0,81)	1.71 (0.93)	0.730
I consider myself qualified to coordinate the health care of a patient with a rare disease	2.40 (1.17)	1.82 (1.02)	0.002
I know the protocol of action that I must follow with a patient with a rare disease	2.19 (1.12)	1.58 (0.83)	0.002
I feel qualified to give genetic counselling to my patients with rare diseases	2.02 (1.01)	1.41 (0,74)	0.001
I know the existence of some of the registries of rare diseases existing in our country	2.33 (1.29)	2.10 (1.26)	0.305
I have enough information about the operation of rare disease registries	1.79 (0.99)	1.58 (0.84)	0.154
I know what the Reference Units for rare diseases are	2.40 (1.22)	1.97 (1.11)	0.029
I know the role of these Reference Units in the monitoring of these diseases	2.38 (1.29)	1.87 (1.07)	0.009
I know the existence of the State Reference Center for People with rare diseases and their families	2.09 (1.23)	1.87 (1.14)	0.272
I know how to refer patients to Reference Units	2.47 (1.32)	1.53 (0.77)	0.001
I know the functions performed by the State Reference Center for People with Rare Diseases and their Families	1.95 (1.07)	1.53 (0.78)	0.019
I know the global / national organizations / associations working in the field of rare disease	2.26 (1.09)	1.58 (0.85)	0.001
Overall	28.16 (10.55)	22.19 (8.77)	0.001

*Significant difference p < 0.05