Skip to main content
. 2019 Sep 16;28(2):213–221. doi: 10.1038/s41431-019-0505-3

Table 4.

Quotes related to the views of participants on genetic testing in palliative care patients and DNA biobanking

Subthemes Selected quotes
Perceptions of genetic testing in palliative care patients Quote 25: “It’s just that caregiving staff must inform [family members] that a test was done. I can see it being done in palliative care. You can say: did you know that your mother passed this test, if 1 day you need the results, just know that they are available… yes, even at the hospital […] As opposed to, did you know that you might be a mutation (genetic variant) carrier which of course will cause a bit of a panic [in family members] […] In any case, in my opinion, I think it’s appropriate.” Participant 3
Quote 26: “Perhaps it could also be: would you like us to send the results to your family physician? Maybe it’s the family physician that’s more suited to analyze the information that is being transmitted. Because sometimes, it may not be as simple as saying: yes, it is inherited. There might be other things that need to be explained.” Participant 4
Quote 27: “My only concern is being admitted in palliative care before being able to pass it [the test]. In my mother’s case, she received palliative care at home. I don’t see how it [the test] could have been done there.” Participant 8
Quote 28: “In my father’s case, in his last weeks of life, he was not always conscious, even not conscious at all during the last two weeks. Therefore, not that it’s too late but, I think it should be, let’s say, the oncologist who monitors the patient [who should initiate the genetic testing process].” Participant 4
Perception of DNA sampling for biobanking Quote 29: “If ever biobanks do exist, family physicians should be made aware of them.” Participant 11
Quote 30: “Let’s say we meet our specialist physician ten years later because of some medical condition. If analyzing this data [biobanks] can help caregivers, especially if it involves information regarding several family members, then, in that case, it will be even more helpful for the medical team.” Participant 4
Quote 31: “Yes. We don’t know, in five years, in ten years, maybe they are going to discover many other things. (Participant 4 nodded in agreement). And if it can be used for research in the meantime [so be it]” Participant 2
Quote 32: “But, I think on the other hand that, when someone gives a specimen for a test, I don’t think it can be used if the consent was not obtained” Participant 5