Table 1.

Overview of the heart-disease specific PROMs identified by the systematic literature search (N = 34)

Name of PROMs	Abbreviation	Reference
Heart diseases in general (n = 5)
Duke Activity Status Index (Duke Activity Status Index – short)	DASI (DASI – short)	Hlatky MA et al., 1989 [26] (Alonso J et al., 1997 [27])
HeartQoL Questionnaire	HeartQoL	Oldridge N et al., 2013 [28]
Multidimensional Index of Life Qualitya	MILQ	Avis NE et al., 1996 [29]
Quality of Life Index - Cardiac version - IV	QLI cardiac version	Ferrans C & Powers M, 1985 [30]
Quality of Life Instruments for Chronic Diseases - coronary heart disease	QLICD-CHD	Wan et al., 2014 [31]
Cardiac arrythmia (n = 6)
AF-QoL Questionnaire	AF-QoL-40	Badia X et al., 2007 [32]
Arrhythmia-specific Questionnaire in Tachycardia and Arrhythmia	ASTA	Walfridsson U et al., 2012 [33] Walfridsson U et al., 2015 [34]
Atrial Fibrillation	AF6	Härdén M et al., 2009 [35]
Atrial Fibrillation Effect on Quality-of-Life Questionnaire	AFEQT	Spertus J et al., 2011 [36]
Patient Perception of Arrhythmia Questionnaire	PPAQ	Wood KA et al., 2009 [37]
Quality of Life Symptom based for Atrial Fibrillation Questionnaire	QLAF	Braganca EO et al., 2010 [38]
Heart failure (n = 14)
Cardiac Health Profile of Congestive Heart Failure	CHPchf	Mannheimer B et al., 2007 [39]
Care-Related Quality of Life survey for Chronic Heart Failure	CaReQoL CHF	Van Kessel P et al., 2017 [40]
Chronic Heart Failure Questionnaire	CHQ	Guyatt GH et al., 1989 [41]
Congenital Heart Disease-TNO/AZL Adult Quality of Lifea	CHD-TAAQOL	Kamphuis M et al., 2004 [42]
Fragebogen zur Erfassung körperlichen Wohlbefindens	FEW16	Kolip P et al., 1999 [43]
Heart Valve Disease Impact on daily life	IDCV	Padilha et al., 2007 [44]
Heart Failure Somatic Awareness Scale	HFSAS	Jurgens CY et al., 2006 [45]
Kansas City Cardiomyopathy Questionnaire	KCCQ	Green CP et al., 2000 [46]
Left Ventricular Dysfunction Questionnaire	LVD-36	O’Leary CJ &Jones PW, 2000 [47]
Memorial Symptom Assessment Scale-Heart Failurea	MSAS-HF	Zambroski CH et al., 2005 [48]
Minnesota Living with Heart Failure Questionnaire	MLHF	Rector TS et al., 1987 [49]
Quality of Life Questionnaire in Severe Heart Failure	QLQ-SHF	Wiklund I et al., 1987 [50]
Symptom Status Questionnaire - Heart Failure	SSQ-HF	Heo S et al., 2014 [51]
Traditional Chinese Medicine inquiry	TCM inquiry	Fu TC et al., 2016 [52]
Ischemic heart disease (n = 9)
Angina-related Limitations at Work Questionnaire	ALWQ	Lerner DJ et al., 1998 [53]
Angina Pectoris Quality of Life Questionnaire	APQLQ	Marquis P et al., 1995 [54]
Cardiovascular Limitations and Symptoms Profile	CLASP	Lewin RJ et al., 2002 [55]
Myocardial Infarction Dimensional Assessment Scale	MIDAS	Thompson DR et al., 2002 [56]
Quality of Life Index	QLI	Rukholm E, et al., 1994 [57]
Quality of Life Questionnaire	QLMI-2	Valenti L, et al., 1996 [58]
Seattle Angina Questionnaire	SAQ	Spertus JA et al., 1995 [36]
Summary Index for the Assessment of Quality of Life in Angina Pectorisa		Wilson A et al., 1991 [59]
WHO Rose Angina Questionnaire (Shortened WHO Rose Angina Questionnaire)		Rose GA, 1962 [60] (Lawlor DA et al., 2003 [61])

PROMs Patient-reported outcome measures

^aIdentified by the expert group