What’s new

• There are 5 PROMs for heart diseases in general, 6 disease-specific PROMs for cardiac arrhythmia, 14 PROMs for heart failure, and 9 PROMs for ischemic heart disease.

• There is a lack of disease-specific PROMs for valve disease and congenital heart disease.

• From a bio-psycho-social perspective, all PROMs included aspects of Body functions, but Activities & Participation and Environmental factors were less often included (missing in 6 and 18 PROMs, respectively).

• The most common specific aspects were about individuals’ emotions and mood, individuals’ energy level and motivation, and individuals’ sensations with cardiovascular functions.

• Less common specific aspects were about medication tolerance, support of family, doing housework, employment, sleep, and sexual relationship, and these were only included in few PROMs.

• There is a need for further development of heart disease-specific PROMs that can support person-centered care.