TABLE 1.
Demographic Characteristics and Clinical Information for Concept Elicitation and Cognitive Interviews
| Concept Elicitation (n = 31 [100%]) |
Cognitive Interviews (n = 15 [100%]) |
||
|---|---|---|---|
| Age, y | Mean (SD) | 44 (13) | 45 (12) |
| Median | 43 | 46 | |
| Range | 20–68 | 29–69 | |
| Sex, No. (%) | Male | 7 (23) | 4 (27) |
| Female | 24 (77) | 11 (73) | |
| Highest level of education completed, No. (%) | High school or less | 2 (6) | 1 (7) |
| Some college or associate degree | 7 (23) | 6 (40) | |
| College graduate (4-y degree) | 9 (29) | 1 (7) | |
| Some postcollege education but not graduate degree | 3 (10) | 0 (0) | |
| Graduate school degree | 10 (32) | 7 (47) | |
| Symptomatology, No. (%) | Symptomatic | 26 (84) | 14 (93) |
| Asymptomatic | 5 (16) | 1 (7) | |
| Tumor site, No. (%)a | Joint/extremity | 7 (23) | 5 (28) |
| Abdominal wall | 7 (23) | 5 (28) | |
| Intra-abdominal | 8 (26) | 4 (21) | |
| Head/neck | 6 (19) | 1 (6) | |
| Other | 6 (19) | 3 (17) | |
| Tumor type, No. (%) | FAP-associated | 5 (16) | 2 (13) |
| Non-FAP, nonrecurring | 16 (52) | 5 (33) | |
| Non-FAP, recurring | 10 (32) | 8 (53) | |
Abbreviations: FAP, familial adenomatous polyposis; SD, standard deviation.
a
The tumor site counts sum to more than 31 because some patients had multiple tumors.