Table 1. Questions and probes for interviews.
| Questions | Probes |
|---|---|
| Do you typically tell patients with kidney disease that they have chronic kidney disease? If so, do you use these words, or other words? If yes, at what point in the diagnosis do you tell the patient? |
Probes: As soon as you feel the diagnosis is confirmed, when you feel it will impact patient health, other. |
| Do you typically describe for patients the level of their disease severity? | Probes: For example, do you describe if they have mild, moderate, or severe disease? How do you discuss this with them, what specific information do you provide? |
| When do you think a person should be told they have kidney disease? | Probes: Never, as soon as it is identified, at the point it might impact health, near dialysis, whenever the doctor feels the patient is ready to hear the information, whenever the doctor wants to, other. |
| What components of a patient’s kidney disease diagnosis do you feel are difficult to explain to patients? | Probes: What makes it difficult? Do tools or resources could help make it less difficult? |
| What information do you feel patients need to enable implementation of most effective management of their chronic kidney disease? | Probes: Classes with patient peers, one-on-one peer supporter, brochures/written materials, trusted websites, an application for smart phones or electronic computer tablets, videos or audios, a health coach. |
| Research shows that some doctors are hesitant to tell patients they have “chronic kidney disease”. This is because some doctors feel it doesn’t change health management much. Do you feel it is important to tell a person they have chronic kidney disease? | Probe: Using the words “chronic kidney disease” or other words? |
| Do you/or your practice provide patients with resources outside of patient visits with the doctor, to learn more about kidney disease management? | Probes: Classes, brochures or other written materials or suggest website. |