Table 1. Theoretically grouped Items, item response patterns, and missing items (n = 260).
| Agree, n | ||||||
|---|---|---|---|---|---|---|
| Theoretical categories Item (i) number and label |
Completely | Somewhat agree | Neither agree nor disagree | Somewhat disagree | Not at all | Missing, n (%) |
| Conversations and information | ||||||
| i1. I feel well-informed * | 68 | 104 | 57 | 23 | 6 | 2 (0.7) |
| i2. Staff discuss my older relative’s care with me * | 53 | 81 | 70 | 35 | 20 | 1 (0.3) |
| i3. Information about how I can best help * | 32 | 49 | 89 | 51 | 35 | 4 (1.5) |
| i4. Staff take time to talk with me * | 92 | 87 | 62 | 13 | 5 | 1 (0.3) |
| i5. I can consult with the staff if I have questions or concerns | 145 | 75 | 29 | 9 | 1 | 1 (0.3) |
| Being present | ||||||
| i6. I can be at my older relative’s side when I want | 205 | 40 | 9 | 5 | 0 | 1 (0.3) |
| i7. There are opportunities for privacy | 195 | 52 | 11 | 1 | 0 | 1 (0.3) |
| i8. I am notified when there is a change | 104 | 83 | 46 | 17 | 6 | 4 (1.5) |
| Completing tasks | ||||||
| i9. Asked to participate in the care | 21 | 60 | 62 | 60 | 51 | 6 (2.3) |
| i10. Agree with the staff | 52 | 80 | 55 | 35 | 29 | 9 (3.5) |
| i11. Discuss with the staff what tasks in the care I can be responsible for | 33 | 50 | 49 | 58 | 60 | 10 (3.8) |
| i12. Tasks the staff are responsible for | 94 | 82 | 58 | 15 | 7 | 4 (1.5) |
| i13. Opportunity to participate | 83 | 89 | 55 | 21 | 8 | 4 (1.5) |
| Being respected for one’s knowledge | ||||||
| i14. Ask me about my knowledge * | 34 | 60 | 71 | 42 | 44 | 9 (3.5) |
| i15. My knowledge is used * | 42 | 81 | 68 | 33 | 27 | 9 (3.5) |
| Being acknowledged as part of the care team | ||||||
| i16. I feel that I am respected | 80 | 86 | 50 | 22 | 16 | 6 (2.3) |
| i17. Being asked about my opinion * | 51 | 75 | 67 | 35 | 27 | 5 (1.9) |
| i18. Involved in decisions * | 56 | 91 | 58 | 33 | 19 | 5 (1.9) |
| I19. Agree on what to do * | 69 | 81 | 65 | 23 | 17 | 5 (1.9) |
| i20a. Formulate goals, symptom relief | 39 | 62 | 60 | 47 | 37 | 15 (5.8) |
| i20b. Formulate goals, nursing | 34 | 62 | 68 | 43 | 37 | 16 (6.1) |
| i20c. Formulate goals, termination of treatment | 32 | 50 | 55 | 50 | 46 | 27 (10.4) |
| i21. Happy with the influence I have * | 72 | 68 | 69 | 26 | 15 | 10 (3.8) |
| Relationship with the staff | ||||||
| i22. Staff are accommodating * | 161 | 72 | 23 | 3 | 0 | 1 (0.3) |
| i23. Interest in me as a person | 71 | 62 | 61 | 35 | 29 | 2 (0.7) |
| i24. Feelings can be expressed * | 95 | 93 | 44 | 16 | 5 | 7 (2.6) |
| i25. Criticism can be given * | 69 | 92 | 61 | 19 | 8 | 11 (4.2) |
| i26. Staff understand my situation * | 93 | 97 | 41 | 19 | 4 | 6 (2.3) |
| i27. Pleased with the contact * | 123 | 74 | 45 | 14 | 1 | 3 (1.1) |
| Trusting the staff | ||||||
| i28. Can maintain her/his identity | 86 | 86 | 50 | 22 | 10 | 6 (2.3) |
| i29a. Gets enough to eat * | 158 | 69 | 21 | 8 | 0 | 4 (1.5) |
| i29b. Gets enough to drink * | 147 | 78 | 21 | 7 | 1 | 6 (2.3) |
| i29c. Gets relief * | 104 | 94 | 45 | 8 | 1 | 8 (3.1) |
| i29d. Gets good care * | 131 | 86 | 27 | 7 | 1 | 8 (3.1) |
| i29e. Gets well approached * | 150 | 93 | 11 | 3 | 0 | 3 (1.1) |
| i30. Trust that he/she gets necessary care * | 120 | 84 | 44 | 7 | 1 | 4 (1.5) |
| i31. I do not need to ensure that my older relative receives the care he/she needs * | 116 | 80 | 38 | 12 | 7 | 7 (2.6) |
*Items inspired by the Family Collaboration Scale. Items are rephrased and response categories changed [46].