Table 1.

Measures and time points for patients and parents

Outcomes	Instruments	t1		t2		t3
		Patient	Parent	Patient	Parent	Patient	Parent
Demographics	Standard inventory	x	x
Clinical data	CRF	x		x		x
Participation	CASP	x		x		x
Evaluation of the treatment	FBB			x	x
Self-concept	SDQ	x		x		x
Fatigue	EORTC QLQ-C30	x		x		x
Social Support	SSS	x		x		x
Illness perception	IPQ	x		x		x
Self-efficacy	SWE	x		x		x
Optimism	BFW	x		x		x
Autonomy	Kidscreen	x		x		x
Psychosocial problems/strengths	SDQ-D	x		x		x
Familial burden	FaBel				x		x
Family resources	FES		x				x
Psychosocial needs	SCNS-SF-34		x		x
Satisfaction with life	SWLS		x		x		x
Doctor-parent relationship	PRA-D				x
Quality of life	KINDL-R	x		x		x
	SF-12		x		x		x
Sense of coherence	C-SOC	x		x		x
	SOC-L9		x		x		x
Coping	CODI	x		x		x
	CHIP-D		x		x		x
Mental health	ChilD-S	x		x		x
	HADS		x		x		x