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. 2020 Jan 20;7(1):e001195. doi: 10.1136/openhrt-2019-001195

Table 1.

Existing CA, SCD and other registries identified

Cardiac arrest registry Other Multisource sudden cardiac death registry
Definition Prehospital metrics primarily collected, using standard Utstein templates.
Index cases only.
No in-person follow-up offered: data collection±phone calls only.
Inclusion criteria may include any of:
epidemiological registry (epistry) receiving minimum data set from referring community registries.
Genetic data only without clinical care.
Single-centre registry – no network-level data from either hospital or ambulance service.
Multisource data surveillance and sampling.
Family members may be screened.
Clinical services offered: in-person meeting and further assessment.
Results of hospital tests, forensic data collected.
Genetic data may be collected and stored.
Function Benchmarking of prehospital and in-hospital performance outcomes primarily using Utstein-type variables to improve system response and management of cardiac arrest with an aim to improve outcomes. A registry not incorporating either standard prehospital metrics nor a multisource surveillance approach. May provide a snapshot of cardiac arrest care from receiving hospital or intermittent data collection or may collect higher level non-clinical data such as genetic data only. To use multiple sources of cardiac arrest reporting to establish the most accurate community rates of SCD.
To provide a centralised clinical quality and research registry that provides families and survivors of SCD with access to state-of-the-art ongoing clinical care and further investigations.
Registries identified
  1. International Cardiac Arrest Registry.

Europe
  1. Paris-Sudden Death Expertise Centre. Registry.

  2. French National Cardiac Arrest Registry.

  3. Parisian Region OHCA Registry.

  4. Belgian Cardiac Arrest Registry.

  5. German Resuscitation Registry.

  6. Vienna Cardiac Arrest Registry.

  7. Ticino Cardiac Arrest Registry.

  8. Hungarian National Ambulance Service Registry.

  9. Silesian Registry of Out of Hospital Cardiac Arrest.

  10. Amsterdam Resuscitation Studies Registry.

  11. Danish Cardiac Arrest registry.

  12. Danish In-hospital Cardiac Arrest Registry.

  13. SCDY in Denmark.

  14. Swedish Cardiac Arrest Registry.

  15. Stockholm Region Arrest Registry.

  16. Helsinki Cardiac Arrest Registry.

  17. FINNRESUSCI Study Group.

  18. Oslo and Akershus Registry.

  19. Iceland Fire and Service Rescue Registry.

  20. Norwegian Cardiac Arrest Registry.

  21. Andalusian Registry of Out-of-Hospital Cardiac Arrest.

  22. Spanish OHCA Registry.

  23. Pavia Cardiac Arrest Registry.

  24. Registry for Out of Hospital Cardiac Arrests in Malta.

  25. Romanian Registry of Cardiac Arrest.

  26. Slovak Cardiac Arrest Registry.

  27. UK Out of Hospital Cardiac Arrest Outcomes Registry.

  28. UK National Cardiac Arrest Audit.

  29. London Ambulance Service Registry.

  30. Scottish Ambulance Service OHCA Registry.

  31. Irish National Out of Hospital Cardiac Arrest Register (OHCAR).


USA and Canada
  1. Seattle Cardiac Arrest Surveillance System.

  2. Get with the Guidelines – Resuscitation.

  3. Save Hearts in Arizona Registry and Education.

  4. University of Ottawa Heart Institute Regional Cardiac Arrest Registry.


South America
  1. Brazilian Registry of In-Hospital CPR (CODE Registry).


Middle East and Africa
  1. Qatar OHCA Registry.

  2. Lebanese Cardiac Arrest Registry.

  3. Egyptian Cardiac Arrest Project.


Asia
  1. Japanese Association for Acute Medicine Out of Hospital Cardiac Arrest Registry.

  2. Utstein Osaka Project.

  3. Taichung Sudden Unexpected Death Registry.

  4. Korean Cardiac Arrest Consortium.


Australia and New Zealand
  1. Queensland Ambulance Service.

  2. South Australia Ambulance Service.

  3. Victorian Ambulance Cardiac Arrest Registry.

  4. St John New Zealand OHCA Registry.

  5. St John Ambulance WA OHCA Registry.

Epistries
  1. Cardiac Arrest Registry to Enhance Survival.

  2. Resuscitation Outcomes Consortium (ROC) Cardiac Arrest Epistry.

  3. Canada Resuscitation Outcomes Consortium.

  4. Pan-Asian Resuscitation Outcomes Study.

  5. Aus-ROC Epistry.


Intermittent data capture (epistry):
  1. European Registry of Cardiac Arrest.


Single-centre registry:
  1. Registry of Malignant Arrhythmias and Sudden Cardiac Death.


Genetic data only:
  1. European Sudden Cardiac Arrest Network.


Subgroups:
  1. Hannover Cooling Registry.

  1. Unexplained Cardiac Death Project.

  2. Nantes Centre for the Prevention of SCD.

  3. Andalusian Registry of Out-of-Hospital Cardiac Arrest: Clinical and Pathological Registry of Tarragona.

  4. Cardiac Risk in the Young.

  5. Pan-Africa SCD study.

  6. Douala-SCD study.

  7. Tunisian Sudden Cardiac Death Registry.

  8. Sudden Death in the Young Registry.

  9. Oregon Sudden Unexplained Death Study.

  10. Sudden Unexplained Death in North Carolina.

  11. Sudden Unexplained Death in Childhood.

  12. Canadian Sudden Cardiac Arrest Network.

Specified subgroups:
  1. Cardiac Arrest Survivors with Preserved Ejection Fraction.

  2. SCD Germany (sport).

  3. FIFA-SDR Registry (football).

CA, cardiac arrest; FIFA-SDR, federation internationale de football association - sudden death registry; OHCA, out of hospital cardiac arrest; SCD, sudden cardiac death; SCDY, sudden cardiac death in the young.