Table 1.
Cardiac arrest registry | Other | Multisource sudden cardiac death registry | |
Definition | Prehospital metrics primarily collected, using standard Utstein templates. Index cases only. No in-person follow-up offered: data collection±phone calls only. |
Inclusion criteria may include any of: epidemiological registry (epistry) receiving minimum data set from referring community registries. Genetic data only without clinical care. Single-centre registry – no network-level data from either hospital or ambulance service. |
Multisource data surveillance and sampling. Family members may be screened. Clinical services offered: in-person meeting and further assessment. Results of hospital tests, forensic data collected. Genetic data may be collected and stored. |
Function | Benchmarking of prehospital and in-hospital performance outcomes primarily using Utstein-type variables to improve system response and management of cardiac arrest with an aim to improve outcomes. | A registry not incorporating either standard prehospital metrics nor a multisource surveillance approach. May provide a snapshot of cardiac arrest care from receiving hospital or intermittent data collection or may collect higher level non-clinical data such as genetic data only. | To use multiple sources of cardiac arrest reporting to establish the most accurate community rates of SCD. To provide a centralised clinical quality and research registry that provides families and survivors of SCD with access to state-of-the-art ongoing clinical care and further investigations. |
Registries identified |
USA and Canada
South America
Middle East and Africa
Asia
Australia and New Zealand
|
Epistries
Intermittent data capture (epistry):
Single-centre registry:
Genetic data only:
Subgroups:
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CA, cardiac arrest; FIFA-SDR, federation internationale de football association - sudden death registry; OHCA, out of hospital cardiac arrest; SCD, sudden cardiac death; SCDY, sudden cardiac death in the young.