Table 1.
Scores for the standard and user-centered reportsa
| Standard report | User-centered report | ||||
|---|---|---|---|---|---|
| Mean | SD | Mean | SD | p value | |
| Subjective comprehension, clarity, trust (7-point scale) | |||||
| How well did you understand the information… | 4.94 | 1.23 | 5.74 | 1.18 | <0.001 |
| How clear is the information… | 4.65 | 1.31 | 5.78 | 1.20 | <0.001 |
| How much do you trust the information… | 5.92 | 1.12 | 6.23 | 0.99 | 0.03 |
| Communication efficacy (4-point scale modified from Scheuner et al.16) | |||||
| How satisfied are you with… | |||||
| The general format (look and feel)… | 2.62 | 0.90 | 3.31 | 0.71 | <0.001 |
| The amount of information… | 2.83 | 0.83 | 3.38 | 0.73 | <0.001 |
| The organization of the information… | 2.68 | 0.88 | 3.29 | 0.71 | <0.001 |
| How easy is it to… | |||||
| Find the test result… | 2.67 | 0.95 | 3.35 | 0.78 | <0.001 |
| Find information…to help with decision making? | 2.42 | 0.90 | 3.10 | 0.78 | <0.001 |
| Understand the language used… | 2.35 | 0.88 | 3.25 | 0.78 | <0.001 |
| Understand the test result presented… | 2.53 | 0.89 | 3.34 | 0.76 | <0.001 |
| Understand the interpretation of the test result… | 2.56 | 0.90 | 3.13 | 0.80 | <0.001 |
| How effectively does the first page of the report… | |||||
| Communicate the test result? | 2.67 | 0.88 | 3.38 | 0.73 | <0.001 |
| Communicate what this test result means? | 2.47 | 0.98 | 3.23 | 0.67 | <0.001 |
| Communicate the patient’s options (i.e., John’s options) having received this test result? | 2.16 | 1.00 | 2.94 | 0.79 | <0.001 |
| Communicate the availability of information resources for the patient (i.e., John)? | 1.98 | 0.96 | 2.95 | 0.86 | <0.001 |
| Communicate the availability of information resources for health professionals (i.e., John’s GP)? | 2.10 | 0.92 | 2.87 | 0.82 | <0.001 |
| Inform medical decisions the patient (i.e., John) might have to make as a result of this test? | 2.46 | 0.99 | 3.01 | 0.74 | <0.001 |
| Help you explain what the test result means to other people? | 2.42 | 0.93 | 3.00 | 0.88 | <0.001 |
| Help you understand the medical issues relating to the result? | 2.27 | 0.90 | 2.81 | 0.89 | <0.001 |
| Help you understand the genetic aspects of the result? | 2.40 | 0.93 | 2.97 | 0.85 | <0.001 |
| Communicate any limitations of the test result? | 1.83 | 0.83 | 2.69 | 0.96 | <0.001 |
| Actionability (7-point scale) | |||||
| How clear are you about the next steps that you could take… | 4.40 | 1.60 | 5.53 | 1.35 | <0.001 |
| Do you feel you would have the necessary information to decide what to do next… | 4.26 | 1.71 | 5.21 | 1.52 | <0.001 |
| How certain are you about what you would do next… | 4.49 | 1.75 | 5.62 | 1.32 | <0.001 |
| Do you feel you would have the necessary professional support to decide what to do next… | 4.45 | 1.53 | 5.47 | 1.30 | <0.001 |
| How ready would you feel to take any next steps… | 4.27 | 1.72 | 5.21 | 1.38 | <0.001 |
aTo make the table more compact, ellipses (“…”) appearing in communication efficacy questions and subjective understanding/clarity/trust questions stand in for the phrase “in the first page of the report” (“of the first page of the report,” communication efficacy question 1). Ellipses appearing in actionability questions stand in for the phrase “if you had received this report in real life.”