Table 2.
Disease impact statement demographics
| Children n = 32 |
Adolescents n = 18 |
Adults n = 45 |
|
|---|---|---|---|
| Country, n (%) | |||
| UK | 26 (81.3) | 16 (88.9) | 31 (68.9) |
| USA | 2 (6.3) | 1 (5.6) | 6 (13.3) |
| Australia | 0 (0.0) | 0 (0.0) | 1 (2.2) |
| Not specified | 4 (12.5) | 1 (5.6) | 7 (15.6) |
| Patient sex, n (%) | |||
| Male | 12 (37.5) | 3 (16.7) | 7 (15.6) |
| Female | 17 (53.1) | 14 (77.8) | 11 (24.4) |
| Note specified | 3 (9.4) | 1 (5.6) | 27 (60.0) |
| Respondent category, n (%) | |||
| Patient | 0 (0.0) | 0 (0.0) | 33 (73.3) |
| Parent | 26 (81.3) | 13 (72.2) | 6 (13.3) |
| Other family | 5 (15.6) | 4 (22.2) | 6 (13.3) |
| Other | 1 (3.1) | 1 (5.6) | 0 (0.0) |