. Author manuscript; available in PMC: 2021 Feb 1.

Published in final edited form as: Pediatr Crit Care Med. 2020 Feb;21(2):136–142. doi: 10.1097/PCC.0000000000002109

Table 1:

Parent and Patient Demographic Characteristics

Parent Demographics		N = 39 (%)
Relationship to Child	Mother	25 (64.1)
Parent Age (Years)	20–29	5 (12.8)
	30–39	19 (48.7)
	40–49	12 (30.8)
	50–59	3 (7.7)
Marital Status	Married	26 (68.4)
Highest Education Completed	Some middle school	1 (2.6)
	Graduated High School/GED	23 (59)
	Bachelors	4 (10.3)
	Graduate/professional degree	11 (28.2)
Employment Status	Employed	28 (73.7)
Religious Affiliation	None	14 (35.9)
	Christian	12 (30.8)
	Muslim	1 (2.6)
	Other	12 (30.8)
Insurance Type	Medicaid	19 (48.7)
Insurance Type	Private	20 (51.3)
Patient Demographics		N = 39 (%)
Age (months)	Median (IQR)	11 (0–248)
Race	Black	19 (48.7)
	White	17 (43.6)
	Other	3 (7.7)
Primary Indication for Tracheostomy	Respiratory	22 (56.4)
Primary Indication for Tracheostomy	Non- Respiratory	17 (43.6)
Patient location	PICU	24 (61.5)
	NICU	12 (30.8)
	CICU	3 (7.7)
Tracheostomy Accepted Death	Yes	31 (79.5)
Tracheostomy Accepted Death	Death after Tracheostomy	8 (25.8)
Tracheostomy Refused Death	Yes	8 (20.5)
Tracheostomy Refused Death	Death without Tracheostomy	3 (37.5)
Disposition	Home	16 (41)
	Death	11 (28.2)
	Long-Term Care Facility	9 (23.1)
	Lost to follow-up	3 (7.7)