Table 2.
Adolescents’ and Parents’ Categorical and Aggregate Choices made Independently and Jointly
| Categorical Choices | Adolescent Independent Decisions (N=163) No. (%) | Parent Independent Decisions (N=163) No. (%) | P-Valuea | Dyads’ Final Joint Decisions (N=163) No. (%) |
|---|---|---|---|---|
| Preventableb | ||||
| Preventable + Not Preventable | 133 (81.6) | 147 (90.2) | .016 | 142 (87.1) |
| Only Preventable | 30 (18.4) | 16 (9.8) | 21 (12.9) | |
| Treatableb | ||||
| Treatable + Not Treatable | 125 (76.7) | 136 (83.4) | .078 | 129 (79.1) |
| Only Treatable | 38 (23.3) | 27 (16.6) | 34 (20.9) | |
| Adult-onset Conditions | ||||
| Yes | 138 (84.7) | 152 (93.3) | .0006 | 149 (91.4) |
| Carrier Results for Autosomal Recessive Conditions | 151 (92.6) | 156 (95.7) | .23 | 154 (94.5) |
| Yes | ||||
| Granular Choices | ||||
| Yes | 22 (13.5) | 15 (9.2) | .21 | 23 (14.1) |
| Aggregate Choice (Learn All vs. Not All Results) | ||||
| All | 105 (64.4) | 124 (76.1) | .0056 | 115 (70.6) |
| Not All | 58 (35.6) | 39 (23.9) | 48 (29.4) |
a
Differences between parents’ and adolescents’ independent choices based on McNemar’s test
b
No participants chose to only learn “Not Preventable” or “Not Treatable.” These choices are therefore not represented in Table 2.