TABLE 1.

Modules included in the standardised pulmonary ciliary dyskinesia (PCD) follow-up form (FOLLOW-PCD)

To be completed by clinical staff
1	Patient information, diagnostic evaluation and baseline medical history
2	Physical examination of lungs and heart
3	Physical examination of upper airways and ears
4	Growth measurements and clinical tests (lung function, imaging, microbiology)
5	Hospitalisations and treatment (surgeries, medication, physiotherapy)
6	Clinical symptoms (version A)
7	Environment and lifestyle (version A)
To be completed by patients
8	Clinical symptoms (version B)
9	Environment and lifestyle (version B)