Skip to main content
. Author manuscript; available in PMC: 2022 Feb 1.
Published in final edited form as: J Cancer Educ. 2021 Feb;36(1):72–84. doi: 10.1007/s13187-019-01599-y

Table 4.

Measures Used in the Randomized Trial

Variables Measures Baseline 1-Month 6-Month
Demographics Age, education, income, race, ethnicity, marital status, employment X
Family/Medical History Familial mutation, family cancer history, number of children X
Knowledge 10-items about BRCA knowledge [34, 61] X X X
Perceived Risks Perceived risk of BRCA mutation and colon, prostate, lung, pancreatic and breast cancer X
Attitudes Adapted version of the Multidimensional Measure of Informed Choice [43, 44, 62] X
Decisional Conflict 16-item Decisional Conflict Scale [63] X X
Help/Harm of Genetic Testing 11-items asking ways that BRCA1/2 testing could help or harm participant (e.g., “Undergoing BRCA1/2 gene testing may make me anxious or worried.”); Adapted from Bancroft et al. [64] X X X
Reasons for not pursuing testing 8-items assessing reasons for not pursuing testing (e.g. “Did not know testing was an option”) X X X
Genetic Counseling and Testing Assess genetic counseling/testing/test result. Assess counseling/testing discussions with physician X X X
Testing Decision Satisfaction Satisfaction with Decision Scale [65, 66] X
Distress Cancer distress: 15-item Impact of Event Scale [67]; Genetic testing distress: 21-item MICRA [68] X X
Stress 4-item Perceived Stress Scale [69] X X
Cancer Worry 4-items adapted from Lerman’s Cancer Worry Scale [70] X X
Depression/Anxiety PROMIS Depression and Anxiety Scales [71] X
Global Health PROMIS Global Health Scale [72] X
Risk Management Self-report of ever/last use of cancer screening tests; Assess if discussed management options with physician and physician recommendations X X
WI Use/Process WI Log-in data; Perceptions of how informative and helpful WI is, perception of WI quality. X