Table 1.
Characteristics of PLM members with SLE (2011–2017) included in analyses
| Characteristics | Median (IQR) | N |
|---|---|---|
| Age at PLM registration [years] | 46 (38–53) | 21,101 |
| Age at first SLE symptoms [years] | 30 (21–39) | 6489 |
| Age at SLE diagnosis [years] | 36 (27–44) | 6936 |
| n (%) | N | |
|---|---|---|
| Women | 20,370 (96.8) | 21,050 |
| Country of residence | 19,502 | |
| United States | 18,491 (94.8) | |
| UK | 442 (2.3) | |
| Canada | 203 (1.0) | |
| Other | 366 (1.9) | |
| Race | 17,994 | |
| White | 12,191 (67.8) | |
| Black or African American | 4026 (22.4) | |
| Mixed race | 1139 (6.3) | |
| American Indian or Alaskan Native | 333 (1.9) | |
| Asian | 235 (1.3) | |
| Native Hawaiian or other Pacific Islander | 70 (< 1.0) | |
| Hispanic or Latino ethnicity | 2308 (13.3) | 17,371 |
| Education | 6400 | |
| High school or less | 1145 (17.9) | |
| Some college | 3065 (47.9) | |
| Undergraduate or higher degree | 2190 (34.2) | |
| Health insurance | 6029 | |
| Commercial | 2850 (47.3) | |
| Medicare | 1338 (22.2) | |
| Medicaid | 945 (15.7) | |
| Uninsured | 321 (5.3) | |
| Other | 575 (9.5) |
IQR interquartile range, PLM PatientsLikeMe, SLE systemic lupus erythematosus