Table 2.
Structures and processes to support children assisted with LTV
| Domain and Item | Number of countries %(n) |
|---|---|
| Screening and Assessment | |
| Policies and procedures to support preventative screening, assessment and referral for routine developmental checks | 46.2(12) |
| Mechanisms in place to document and communicate the results of assessments and screening to all the services who provide care to the child | 46.2(12) |
| Mechanisms in place to support the communication of screening and assessment to parents/guardians | 38.5(10) |
| Access to Care | |
| Mechanisms in place to identify all healthcare providers caring for the child | 53.8(14) |
| Assistance with transport of the child to hospital appointments | 30.8(8) |
| Policies or procedures in place to support the provision of linguistically appropriate information to the family | 41.7(12) |
| Policies or procedures in place to support the provision of culturally appropriate information to the family | 42.3(11) |
| Care Coordination | |
| Policies and procedures in place to support care coordination | 53.8(14) |
| Discharge Planning Coordinator in place in paediatric departments/hospitals | 42.(11) |
| Consultation with parents/ guardians in the development of personalised care plans | 84.6(22) |
| Consultation with all healthcare professionals in the development of personalised care plans | 73.1(19) |
| Community Based Services and Supports | |
| Family advocacy groups involved in making recommendations to home and community-based services | 38.5(10) |
| Policies in place to support paediatric palliative care and end-of-life care | 65.4(11) |
| Access to psychological support for parents/guardians and siblings | 84.6(22) |
| Family-Professional Partnerships | |
| Family advocacy groups involved in the development of policies and procedures affecting the care of the child | 46.2(12) |
| Parents/guardians included in national quality improvements | 30.8(8) |
| Parents/guardians included in the review of patient / family information | 38.5(10) |
| Quality Assurance | |
| Policies or procedures in place to support quality assurance for service providers | 57.7 (15) |
| Data collected on the experience of care from the perspective of the parents/guardians | 30.7 (8) |
| Data collected on the experience of care from the perspective of the siblings | 11.5 (3) |