TABLE 1.
Demographic data for the HDQLIFE participants
Variable | Premanifest, n = 204 | Early, n=198 | Late, n = 125 | All, N = 527 |
---|---|---|---|---|
Age, y; M (SD)a | 42.7 (12.0) | 51.4 (12.7) | 54.7 (12.0) | 48.8 (13.2) |
Sex | ||||
Female | 65.4 | 53.5 | 57.6 | 59.0 |
Male | 34.6 | 46.5 | 42.4 | 41.0 |
Ethnicitya | ||||
Not Hispanic or Latino | 92.7 | 92.9 | 96.8 | 93.7 |
Hispanic or Latino | 1.5 | 4.6 | 0.8 | 2.5 |
Not provided | 5.9 | 2.5 | 2.4 | 3.8 |
Racea | ||||
White | 97.5 | 96.5 | 92.8 | 96.0 |
African American | 0.0 | 2.0 | 6.4 | 2.3 |
Other | 2.0 | 1.5 | 0.0 | 1.5 |
Unknown | 0.5 | 0.0 | 0.8 | 0.2 |
Education, y; M (SD)a | 15.9 (2.9) | 14.7 (2.8) | 14.2 (2.6) | 15.1 (2.9) |
Marital statusa | ||||
Single, never married | 15.8 | 15.2 | 11.8 | 14.6 |
Married | 67.4 | 52.9 | 61.3 | 60.5 |
Separated/divorced | 13.8 | 25.1 | 23.5 | 20.4 |
Widowed | 0.0 | 2.6 | 3.4 | 1.8 |
Living with partner | 3.0 | 4.2 | 0.0 | 2.7 |
Years since diagnosis | n = 154 | n =75 | N = 230 | |
M (SD) | - | 3.14 (3.74) | 5.99 (4.62) | 4.05 (4.25) |
CAG repeatsa | n = 190 | n = 145 | n = 56 | N = 391 |
M (SD) | 42.2 (2.9) | 43.1 (3.9) | 44.4 (6.6) | 42.9 (4.1) |
Entries in the table represent percentage of participants unless otherwise specified. Premanifest participants (M = 42.7, SD = 12.0) were significantly younger than early stage (M = 51.4, SD = 12.7), who were significantly younger than late-stage participants (M = 54.7, SD = 12.0; F2, 524 =44.25, P< 0.0001); early-stage (M = 14.7, SD = 2.8) and late-stage (M = 14.2, SD = 2.6) participants had 1 to 1.5 years less education relative to premanifest HD participants (M = 15.9 years, SD = 2.9; F2, 502 =15.78, P < 0.0001). The late-stage group had more African Americans than the early-stage and premanifest groups (Fisher’s exact P = 0.0005); the early-stage group had fewer married participants than the premanifest or late-stage groups, and the premanifest group had fewer widowed participants than the manifest groups, χ2(8, N = 527) = 21.9, P = 0.0051; there were marginal differences for gender, χ2(2, N = 527) = 5.27 (P = 0.07), and ethnicity (Fisher’s exact P = 0.06).
Significant group differences for this variable.
M, mean; SD, standard deviation.