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. Author manuscript; available in PMC: 2020 Dec 1.
Published in final edited form as: Mov Disord. 2019 Oct 14;34(12):1910–1914. doi: 10.1002/mds.27866

TABLE 1.

Demographic data for the HDQLIFE participants

Variable Premanifest, n = 204 Early, n=198 Late, n = 125 All, N = 527

Age, y; M (SD)a 42.7 (12.0) 51.4 (12.7) 54.7 (12.0) 48.8 (13.2)
 Sex
 Female 65.4 53.5 57.6 59.0
 Male 34.6 46.5 42.4 41.0
Ethnicitya
 Not Hispanic or Latino 92.7 92.9 96.8 93.7
 Hispanic or Latino 1.5 4.6 0.8 2.5
 Not provided 5.9 2.5 2.4 3.8
Racea
 White 97.5 96.5 92.8 96.0
 African American 0.0 2.0 6.4 2.3
 Other 2.0 1.5 0.0 1.5
 Unknown 0.5 0.0 0.8 0.2
 Education, y; M (SD)a 15.9 (2.9) 14.7 (2.8) 14.2 (2.6) 15.1 (2.9)
Marital statusa
 Single, never married 15.8 15.2 11.8 14.6
 Married 67.4 52.9 61.3 60.5
 Separated/divorced 13.8 25.1 23.5 20.4
 Widowed 0.0 2.6 3.4 1.8
 Living with partner 3.0 4.2 0.0 2.7
Years since diagnosis n = 154 n =75 N = 230
 M (SD) - 3.14 (3.74) 5.99 (4.62) 4.05 (4.25)
CAG repeatsa n = 190 n = 145 n = 56 N = 391
 M (SD) 42.2 (2.9) 43.1 (3.9) 44.4 (6.6) 42.9 (4.1)

Entries in the table represent percentage of participants unless otherwise specified. Premanifest participants (M = 42.7, SD = 12.0) were significantly younger than early stage (M = 51.4, SD = 12.7), who were significantly younger than late-stage participants (M = 54.7, SD = 12.0; F2, 524 =44.25, P< 0.0001); early-stage (M = 14.7, SD = 2.8) and late-stage (M = 14.2, SD = 2.6) participants had 1 to 1.5 years less education relative to premanifest HD participants (M = 15.9 years, SD = 2.9; F2, 502 =15.78, P < 0.0001). The late-stage group had more African Americans than the early-stage and premanifest groups (Fisher’s exact P = 0.0005); the early-stage group had fewer married participants than the premanifest or late-stage groups, and the premanifest group had fewer widowed participants than the manifest groups, χ2(8, N = 527) = 21.9, P = 0.0051; there were marginal differences for gender, χ2(2, N = 527) = 5.27 (P = 0.07), and ethnicity (Fisher’s exact P = 0.06).

a

Significant group differences for this variable.

M, mean; SD, standard deviation.