Table 2.

Cohort characteristics (N=68)

	N=68	N=40 used for test-retest
Age, median (IQR) (years)	57.5 (42.5–63.5)	58.5 (40.5–63)
Male sex, n (%)	41 (60.3%)	26 (65.0%)
Race
White	58 (85.3%)	37 (92.5%)
Asian	3 (4.4%)	1 (2.5%)
Black	3 (4.4%)	1 (2.5%)
Hawaiian Native/Pacific Islander	1 (1.5%)	0 (0%)
Other	3 (4.4%)1	1 (2.5%)2
Hispanic	0 (0%)	0 (0%)
Marital status
Married/living with partner	43 (64.2%)	27 (67.5%)
Single, never married	14 (20.9%)	7 (17.5%)
Divorced, separated	8 (11.9%)	6 (15.0%)
Widowed	1 (1.5%)	0 (0%)
Married/not living with partner	1 (1.5%)	0 (0%)
Missing	[N=1]
Education
Less than college	8 (11.9%)	5 (13%)
Some college	16 (23.9%)	9 (22.5%)
College graduate	24 (35.8%)	14 (35.0%)
Post graduate degree	19 (28.4%)	12 (30.0%)
Missing	[N=1]
Work/School status
Working or school full time	22 (32.8%)	15 (37.5%)
Working part time	6 (9.0%)	3 (7.5%)
Retired	16 (23.9%)	10 (25.0%)
Disabled, unable to work	12 (17.9%)	8 (20.0%)
Homemaker	7 (10.4%)	3 (7.5%)
On medical leave	2 (3.0%)	0 (0%)
Unemployed, looking foi work	2 (3.0%)	1 (2.5%)
Missing	[N=1]	[N=0]
NIH severity at enrollment (patient self-report)
Mild	36 (53.7%)	21 (52.5%)
Moderate	29 (43.3%)	17 (42.5%)
Severe	2 (3.0%)	2 (5.0%)
Missing	[N=1]
NIH severity at enrollment (per NIH criteria)
Mild	10 (14.7%)	5 (12.5%)
Moderate	30 (44.1%)	16 (40.0%)
Severe	28 (41.2%)	19 (47.5%)
Median time from transplant to chronic GVHD, months (IQR)	8.4 (5.4–11.8)	10.0 (5.8–12.3)
Median time from chronic GVHD diagnosis to enrollment, months (IQR)	34.9 (19.4–64)	34.9 (19.6 – 60.5)
Score 2–3 organ involvement
Skin	31 (45.6%)	19 (47.5%)
Eye	23 (33.8%)	15 (37.5%)
Mouth	5 (7.4%)	2 (5.0%)
Gastrointestinal	1 (1.5%)	1 (2.5%)
Liver (1 missing)	0 (0%)	0 (0%)
Lung (l missing)	7 (10.4%)	6 (15.4%)
Joint	12 (17.6%)	8 (20.0%)

¹Asian and Indian, Portuguese, and American

²American