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. 2020 Jan 15;9(2):e013047. doi: 10.1161/JAHA.119.013047

Table 2.

Recommendation for PROs Implementation in HF Clinics Based on Identified Barriers

Barrier Recommendation
Data collection
Burden Secure administrative and financial support
Achieve full engagement of the providers and patients
Optimize workflow:
Replace unstructured questioning on functional status with PROs
Assess PROs before the clinic visit, ideally through online data submission
Use real‐time scoring of PROs with electronic health record integration with presentation in an interpretable format
PROs frequency: HF‐specific PROs with every encounter, comprehensive PRO panel at 3‐ to 6‐mo interval
Language and health literacy/cognitive barriers Use available PRO instrument translations
Patient proxy or a nurse may be assisting in completing the PROs
Results presentation
Present PROs trends with time on the x‐axis and the PRO score on the y‐axis, ideally with clear labels along the y‐axis facilitating interpretation of the scores (eg, by New York Heart Association class; symptoms frequency—daily, weekly, monthly, no; health status—very poor, poor, fair, good, excellent)
Ambiguous meaning of scales Educate providers on PRO interpretation
Summary score vs domain score Provide summary score with the option to review domain scores
PRO utility and clinical value
Clinical judgment supersedes PRO Educate providers on PRO nature, utility, and additional value over standard history taking
Actionable PRO data Educate providers on PRO thresholds for action
Research demonstrating improved care and outcomes with the use of PROs is needed
PROs selection Both HF‐specific and generic PROs should be implemented in HF clinics, balanced with careful attention to patient response burden and interpretability
Prevent repeating the same or similar questions when combining multiple PROs
Intended audience for PROs Approach all providers that participate in care of HF patients