Table 2.
Recommendation for PROs Implementation in HF Clinics Based on Identified Barriers
Barrier | Recommendation |
---|---|
Data collection | |
Burden | Secure administrative and financial support |
Achieve full engagement of the providers and patients | |
Optimize workflow: | |
Replace unstructured questioning on functional status with PROs | |
Assess PROs before the clinic visit, ideally through online data submission | |
Use real‐time scoring of PROs with electronic health record integration with presentation in an interpretable format | |
PROs frequency: HF‐specific PROs with every encounter, comprehensive PRO panel at 3‐ to 6‐mo interval | |
Language and health literacy/cognitive barriers | Use available PRO instrument translations |
Patient proxy or a nurse may be assisting in completing the PROs | |
Results presentation | |
Present PROs trends with time on the x‐axis and the PRO score on the y‐axis, ideally with clear labels along the y‐axis facilitating interpretation of the scores (eg, by New York Heart Association class; symptoms frequency—daily, weekly, monthly, no; health status—very poor, poor, fair, good, excellent) | |
Ambiguous meaning of scales | Educate providers on PRO interpretation |
Summary score vs domain score | Provide summary score with the option to review domain scores |
PRO utility and clinical value | |
Clinical judgment supersedes PRO | Educate providers on PRO nature, utility, and additional value over standard history taking |
Actionable PRO data | Educate providers on PRO thresholds for action |
Research demonstrating improved care and outcomes with the use of PROs is needed | |
PROs selection | Both HF‐specific and generic PROs should be implemented in HF clinics, balanced with careful attention to patient response burden and interpretability |
Prevent repeating the same or similar questions when combining multiple PROs | |
Intended audience for PROs | Approach all providers that participate in care of HF patients |