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. 2019 Dec 6;3(Suppl 1):16–19. doi: 10.1182/bloodadvances.2019GS121614

Table 2.

Completeness compared with WHO recommendations

WHO/IARC Variable Present in TASH Registry Present in Jimma Registry
The person
 Personal identification Yes Yes
 Date of birth No No
 Sex Yes Yes
 Ethnic group Yes Yes
 Address (postal/ZIP code and phone number) Yes Yes
The tumor
 Incidence date Yes Yes
 Primary tumor site Yes Yes
 Laterality No No
 Primary tumor histology No Yes
 Behavior No No
 Basis of diagnosis No No
 Stage (condensed TNM) Yes Yes
 Initial therapy Yes Yes
  Surgery Yes Yes
  Radiotherapy Yes Yes
  Chemotherapy Yes Yes
  Endocrine (hormones) No No
 Sources of information Yes (diagnostics means) No
Follow-up
 Last follow-up date No Yes
 Vital status (at last follow-up date) No No
 Date of death Yes Yes

We noted many differences between the data sheets for the 2 hospitals and with WHO/International Agency for Research on Cancer (IARC) recommended variables. We estimated the overall rate of completion to be <50%.

ZIP, Zone Improvement Plan.