Table 2.
Themes and categories with code frequency and type of response
| Interviews | Focus Groups | Total | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Positive | Neutral | Negative | Positive | Neutral | Negative | Positive | Neutral | Negative | ||||
| Hospitalization procedure | 102 | 35 | 137 | |||||||||
| Emergency Room admission | 0 (0%) | 14 (63.6%) | 8 (36.4%) | 22 | 0 (0%) | 4 (57.1%) | 3 (42.9%) | 7 | 0 (0%) | 18 (62.1%) | 11 (37.9%) | 29 |
| Hospital Stay | 0 (0%) | 8 (100%) | 0 (0%) | 8 | 1 (25%) | 3 (75%) | 0 (0%) | 4 | 1 (8.3%) | 11 (91.7%) | 0 (0%) | 12 |
| Hospital discharge | 3 (6.5%) | 42 (91.3%) | 1 (2.2%) | 46 | 0 (0%) | 10 (100%) | 0 (0%) | 8 | 3 (5.6%) | 50 (92.6%) | 1 (1.9%) | 54 |
| in-hospital procedures | 2 (7.7%) | 21 (80.8%) | 3 (11.5%) | 26 | 1 (6.3%) | 14 (87.5%) | 1 (6.3%) | 16 | 3 (7.1%) | 35 (83.3%) | 4 (9.5%) | 42 |
| Health literacy around patient’s condition | 118 | 51 | 169 | |||||||||
| Background | 0 (0%) | 23 (100%) | 0 (0%) | 23 | 0 (0%) | 20 (100%) | 0 (0%) | 20 | 0 (0%) | 43 (100%) | 0 (0%) | 43 |
| Diagnose | 0 (0%) | 37 (97.4%) | 1 (2.6%) | 38 | 0 (0%) | 14 (100%) | 0 (0%) | 14 | 0 (0%) | 51 (98.1%) | 1 (1.9%) | 52 |
| Disease improvement | 0 (0%) | 12 (100%) | 0 (0%) | 13 | 1 (20%) | 4 (80%) | 0 (0%) | 4 | 1 (5.9%) | 16 (94.1%) | 0 (0%) | 17 |
| Knowledge about symptoms | 0 (0%) | 13 (100%) | 0 (0%) | 13 | 0 (0%) | 4 (100%) | 0 (0%) | 4 | 0 (0%) | 17 (100%) | 0 (0%) | 17 |
| Poor knowledge | 0 (0%) | 29 (96.7%) | 1 (3.3%) | 31 | 0 (0%) | 8 (88.9%) | 1 (11.1%) | 9 | 0 (0%) | 37 (94.9%) | 2 (5.1%) | 40 |
| Information content | 163 | 41 | 204 | |||||||||
| Information on the admission | 4 (12.5%) | 27 (84.4%) | 1 (3.1%) | 37 | 2 (20%) | 8 (80%) | 0 (0%) | 11 | 6 (14.3%) | 35 (83.3%) | 1 (2.4%) | 48 |
| Information provided by physician | 3 (5.7%) | 49 (92.5%) | 1 (1.9%) | 53 | 2 (12.5%) | 12 (75%) | 2 (12.5%) | 16 | 5 (7.2%) | 61 (88.4%) | 3 (4.3%) | 69 |
| Understanding of the information | 6 (9.5%) | 53 (84.1%) | 4 (6.3%) | 63 | 1 (9.1%) | 9 (81.1%) | 1 (9.1%) | 11 | 7 (9.5%) | 62 (83.8%) | 5 (6.8%) | 74 |
| Lack of information | 0 (0%) | 8 (100%) | 2 (20%) | 10 | 0 (0%) | 3 (100%) | 0 (0%) | 3 | 0 (0%) | 11 (84.6%) | 2 (14.5%) | 13 |
| Satisfaction | 85 | 37 | 122 | |||||||||
| Satisfaction with healthcare professionals | 25 (89.3%) | 0 (0%) | 3 (10.7%) | 28 | 5 (71.4%) | 0 (0%) | 3 (28.6%) | 7 | 30 (85.7%) | 0 (0%) | 5 (14.3%) | 35 |
| Satisfaction with services | 19 (86.4%) | 1 (4.5%) | 2 (9.1%) | 22 | 2 (66.7%) | 0 (0%) | 1 (33.3%) | 3 | 21 (84%) | 1 (4%) | 3 (12%) | 25 |
| Complaints | 0 (0%) | 0 (0%) | 12 (100%) | 12 | 0 (0%) | 0 (0%) | 20 (100%) | 20 | 0 (0%) | 0 (0%) | 32 (100%) | 32 |
| Discomfort | 0 (0%) | 21 (91.3%) | 2 (8.7%) | 23 | 0 (0%) | 5 (71.4%) | 2 (28.6%) | 7 | 0 (0%) | 26 (86.7%) | 4 (13.3%) | 30 |
| Professional-patient relationship | 48 | 17 | 65 | |||||||||
| Trust with the professional | 0 (0%) | 5 (100%) | 0 (0%) | 5 | 1 (25%) | 3 (75%) | 0 (0%) | 4 | 1 (11.1%) | 8 (88.9%) | 0 (0%) | 9 |
| Shared decision making | 0 (0%) | 6 (100%) | 0 (0%) | 6 | 0 (0%) | 0 (0%) | 0 (0%) | 0 | 0 (0%) | 6 (100%) | 0 (0%) | 6 |
| Professional care | 0 (0%) | 26 (100%) | 0 (0%) | 26 | 0 (0%) | 11 (100%) | 0 (0%) | 11 | 0 (0%) | 37 (100%) | 0 (0%) | 37 |
| Patient proactivity | 25 | 10 | 35 | |||||||||
| Family context | 1 (16.7%) | 5 (83.3%) | 0 (0%) | 6 | 0 (0%) | 3 (100%) | 0 (0%) | 3 | 1 (11.1%) | 8 (88.9%) | 0 (0%) | 9 |
| Behaviour & attitude | 1 (5.3%) | 18 (94.7%) | 0 (0%) | 19 | 1 (14.3%) | 6 (85.7%) | 0 (0%) | 7 | 2 (7.7%) | 24 (92.3%) | 0 (0%) | 26 |