Table 2.
Study Concepts, Operational Measures and Data Collection Time Method
| Aim | Time Frame | Concept | Measure | Data Collection Method |
|---|---|---|---|---|
| Day of Hospital Discharge | Hospitalization Characteristics | Hospitalization Questions | Medical record review | |
| Family Member and Child Demographics | Demographics Questionnaire | Family member report | ||
| Self-Efficacy | Self-Efficacy Questions | Family member report | ||
| Family Quality of Life | Global Family Quality of Life Scale | Family member report | ||
| Aim 1 | Days 1–30(myFAMI group only) | Family Self-Management | Eight daily app questions | Family member report |
| Aim 2 | Days 1–30(myFAMI group only) | Trigger alert | Log number of triggers | Nurse |
| Trigger response | Log timing for reply to trigger | Nurse | ||
| Response to family | Log nurse response to family | Nurse | ||
| Aim 3 Aim 4 | Days 30–37 | Coping | Post Discharge Coping Difficulty Scale | Telephone interview |
| Family Self-Management Behaviors | Medical Adherence Measure | Telephone interview | ||
| Self-Efficacy | Self-Efficacy Questions | Telephone interview | ||
| Utilization of Healthcare Resources | Utilization questions | Telephone interview | ||
| Health Status of Child | Number of symptom days | Control = Telephone Intervention = App | ||
| Family Quality of Life | Global Family Quality of Life ScalePedsQL Family Impact Scale | Telephone interview | ||
| myFAMI Assessment | App experience questions | Intervention = Telephone | ||
Note. myFAMI = study intervention, PedsQL = Pediatric Quality of Life