Table 1.
Characteristics of the analysed papers
| Study | Setting | Ethnic group | Design | Sample size | Description |
|---|---|---|---|---|---|
| Adamson, 2001 [37] | East Midlands, North West, South East, and South West | Afro‐Caribbean and South Asian | Qualitative study (semistructured interviews) | 30 | Exploring awareness and understanding of dementia symptoms in families of Afro‐Caribbean and South Asian descent through semi‐structured interviews |
| Adamson & Donovan, 2005 [44] | London, Bristol, Leicester, Bradford, Nottingham | Afro‐Caribbean and South Asian | Exploratory qualitative study (semistructured interviews) | 21 | Examining the experience of caring for an older family member, focusing on Afro‐Caribbean and South Asian carers of a person with dementia through semi‐structured interviews |
| Adelman et al., 2011 [8] | 5 general practices in North London | Afro‐Caribbean | Cross‐sectional prevalence study | 436 | Determining the prevalence of dementia in older people of Afro‐Caribbean country of birth compared with their White UK‐born counterparts |
| Beattie, Daker‐White, Gilliard, & Means, 2005 [22] | Local authority areas in South West England | Afro‐Caribbean | Field study (interviews) | 61 | Examining the accessibility of dementia services for people under 65 and people from minority ethnic groups through interviews and assessing the main issues in service access |
| Bhatkal & Shah, 2004 [24] | Geriatric psychiatry services in West London | Polish | Qualitative study (case studies) | 321 | Comparing the clinical, demographic, social, and service utilisation characteristics of elderly patients of Polish origin newly referred to a geriatric psychiatry service |
| Bhatnagar & Frank, 1997 [12] | Bradford | South Asian | Community study | 213 | Assessing the prevalence of psychiatric disorders amongst elderly South Asian immigrants from the Indian subcontinent living in Bradford, UK |
| Bowes & Wilkinson, 2003 [33] | Urban Scottish settings | South Asian | Qualitative study (case studies and interviews) | 11 | Examining the view and experiences of dementia amongst older South Asian people, their families and carers, and to explore central issues of service support through interviews and case studies |
| Haider & Shah, 2004 [25] | Geriatric psychiatry service in West London | South Asian | Pilot study | 59 | A study of behavioural and psychological signs and symptoms of dementia in patients of Indian subcontinent origin admitted to a dementia day hospital in the UK |
| Hailstone, Mukadam, Owen, Cooper, & Livingston, 2017 [40] | London | South Asian | Qualitative study (focus groups and interviews) | 58 | Devising and validating a theory of planned behaviour questionnaire to measure attitudes to help‐seeking for dementia in people from South Asian backgrounds in the UK to assess the effectiveness of future interventions |
| Jutlla, 2015 [26] | Wolverhampton | South Asian | Qualitative study (narrative interviews) | 12 | Exploring how migration experiences and life histories impact on perceptions and experiences of caring for a family member with dementia using narrative interviews |
| La Fontaine et al., 2007 [13] | Birmingham | South Asian | Qualitative study (focus groups) | 49 | Exploring perceptions of ageing, dementia, and ageing‐associated mental health difficulties amongst British people of Punjabi origin through focus groups |
| Lawrence, Murray, Samsi, & Banerjee, 2008 [45] | South London boroughs | Afro‐Caribbean and South Asian |
Qualitative study (interviews) |
32 | Exploring the caregiving attitudes, experiences, and needs of family carers of people with dementia from Afro‐Caribbean, South Asian, and White backgrounds through interviews |
| Livingston et al., 2001 [36] | Islington, North London | Afro‐Caribbean, Turkish, and Greek | Cross‐sectional community study | 1085 | Comparing the prevalence of dementia and depression in older migrants with those born in the UK through a cross‐sectional community study |
| Mackenzie, 2006 [23] | Bradford | South Asian and East European | Qualitative study (semistructured interviews) | 11 | Exploring carers' experiences of caregiving, the nature and availability of family, community, and mainstream service support, knowledge of dementia, and what the carers would want from a support‐group programme through semistructured interviews |
| McCracken et al., 1997 [27] | Liverpool inner city | Afro‐Caribbean, Chinese, and South Asian | Qualitative prevalence study (interviews) | 418 | Identifying all elderly people of ethnic minorities living in a defined geographical area in inner‐city Liverpool and to identify psychiatric morbidity and barriers to use of services through interviews |
| Morgan & Crowder, 2003 [28] | Wales | Welsh | Quantitative repeated measures study | 31 | Determining whether Welsh‐speaking clients suffering from dementia scored differently when assessed using the MMSE in English and in Welsh |
| Mukadam, Cooper, Basit, & Livingston, 2011 [29] | London inner city | Afro‐Caribbean, Chinese, and South Asian | Qualitative study (semistructured interviews) | 18 | Determining the barriers to and facilitators of help‐seeking and the pathways to diagnosis through semistructured interviews |
| Odutoye & Shah, 1999 [30] | West Middlesex University Hospital | South Asian | Qualitative study (case studies) | 242 | Comparing the clinical, demographic, social, and service‐utilisation characteristic between ethnic elders of Indian subcontinent origin and indigenous elders through case studies |
| Parveen, Blakey, & Oyebode, 2018 | 9 sites across UK | South Asian | Qualitative study (focus groups and interviews | 59 | Evaluating a carer's information programme culturally adapted for South Asian families |
| Purandare, Luthra, Swarbrick, & Burns, 2007 [34] | Manchester | South Asian | Quantitative study (questionnaires) | 255 | Examining the knowledge of dementia in South Asian older people as compared to with Caucasian older people, through the Dementia Knowledge Questionnaire |
| Rait et al., 2000 [38] | Manchester inner city | Afro‐Caribbean | Validation study | 130 | Developing culturally modified versions of the MMSE and Abbreviated Mental Test and determining their sensitivity and specificity by comparing them with a diagnostic computerised interview |
| Rait et al., 2000 [39] | Central Manchester | South Asian | Validation study | 120 | Developing culturally modified versions of the MMSE and Abbreviated Mental Test and determining their sensitivity and specificity by comparing them with a diagnostic computerised interview |
| Ramsey, Stevens, Bryan, Binder, & Cockle‐Hearne, 2009 [41] | Surrey | Chinese, Creole, European, Guyanese, and Japanese | Validation study | 144 | Tested the hypothesis that those with English as an additional language would score less well than those with English as a first language on the sub‐tests of the Barnes Language Assessment and elucidate the reasons for any such differences and discuss the implications. |
| Redelinghuys & Shah, 1997 [35] | Geriatric psychiatry service, West London | South Asian | Cross‐sectional comparative study | 235 | Examining the demographic, social, and clinical characteristics of Indian subcontinent origin elders with mental illness through a cross‐sectional comparative study |
| Regan, 2016 [18] | London | South Asian | Qualitative study (case studies, interviews, and observations) | 1 | Investigating the motivations and experiences of accessing dementia care health and social care services for a Muslim, Pakistani male with dementia through a case study comprising formal interviews and observations and informal discussions |
| Richards et al., 2000 [3] | Southwark, London borough | Afro‐Caribbean | Pilot study | 86 | Investigating cognitive function in UK community dwelling Afro‐Caribbean and White elders |
| Shah, 1999 [14] | London | South Asian | Qualitative study (interviews) | 12 | Exploring difficulties experienced by a Gujarati psychiatrist in interviewing Gujarati elders in Gujarati |
| Shah, Lindesay, & Jagger, 1998 [43] | Leicester | South Asian | Qualitative study (interviews and surveys) | 11 | Establishing the stability of an original dementia diagnosis over time in elderly Gujaratis through original cross cultural surveys and reinterviews |
| Stewart, Richards, Brayne, & Mann, 2001 [42] | South London community primary care practices | Afro‐Caribbean | Cross‐sectional normative data study | 285 | To describe normative data for cognitive function in UK community‐dwelling Afro‐Caribbean elders |
| Stewart et al., 2001 [46] | South London primary care | Afro‐Caribbean | Community‐based study | 302 | Examining the association between APOE genotype and early cognitive impairment in a community‐based Afro‐Caribbean UK population |
| Turner et al., 2005 [15] | South London boroughs, Merton, and Wandsworth | South Asian | Qualitative study (semistructured interviews) | 192 | Discovering whether there were differences in views about the nature, causes, and treatments for dementia and who participants believed should provide care between South Asian and White older people |
| Uppal, Bonas, & Philpott, 2014 [31] | Sikh gurdwara in East Midlands | South Asian | Qualitative study (focus groups) | 28 | Exploring the understanding and perceptions of dementia amongst Sikhs living in the UK through focus groups |
| Wilkinson, Bowes, & Rodrigues, 2003 [32] | Urban Scottish settings | South Asian | Feasibility study (case studies and interviews) | 11 | Examining the methods used in a feasibility study that aimed to find ways of making contact with and gaining access to people from South Asian communities with a diagnosis of dementia and to explore their experience of service provision |
Abbreviations: APOE Apolipoprotein E; MMSE Mini‐Mental State Examination.