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. 2020 Feb 25;7:45. doi: 10.3389/fmed.2020.00045

Table 2.

Key features of the studies.

Study ID Country Overall design Aim Intervention name Target Population Facilitators Intervention description Context delivered, duration, frequency Study design and methods Study population Results Conclusion
Clarke et al. (27, 28)
UK
To compare the influence of DA and PSN services to identify ways they contribute to well-being and resilience of people with dementia and family carers 1. DA
2. PSN
People with dementia and Carers/FamiliesLay Health Workers
1. Signpost to other services and ongoing support. Lay Health Worker 2. Psychosocial Support in Alzheimer Society support groups and dementia cafes. Community
Ongoing
Mixed Methods
Qualitative semi-structured Interviews Thematic analysis
Well-being and QoL surveys using ASCOT and DEMQoL. Statistically analyzed.
People with dementia (n = 47) Early Dementia, family carers (n = 54), staff and stakeholders (n = 82). Themes -Addressing the needs of the individual and community
-Promoting independence.
-Control and choice.
-Getting a life back.
Public health models of healthcare provision. Should be used to promote resilience.
Newman et al. (29) and Windle et al. (30)
UK
To evaluate the impact of visual arts enrichment activities on opportunities for resilience. Visual arts enrichment activities people with dementia.
Artists trained about dementia
Creative individual and collective activities Care Home
Weekly, 2 h for 3 months
Mixed Methods (only Qualitative data focused on resilience) Interviews baseline, post-intervention, and 3 months follow up with People with dementia, relatives, and Carers.
Sessions Videoed
Facilitator Structured notes.
People with dementia (n = 48) in care homes (n = 4) aged 70 to 99, CDR scale—n = 6 was 0.5 questionable; n = 18 1 mild; n = 8 2 moderate; n = 16 3 severe, care staff, family (n = 37) Supported resilience through creative expression, increased communication, improved self-esteem and relationships with significant others. Resilience can be supported by visual arts enrichment activities. The concept of respondent habitus may be useful.
Matchar et al. (31)
USA
(Not explicitly stated) Early-Stage and Beyond Community
Post Memory Makers
People with dementia and Family Carers
Four Masters level Social Workers trained by Alzheimer's Association Early-Stage Group Facilitators Manual.
1. Lunch gatherings 2. Museum tours, activities, lunch 3. Support groups 4. Workshop for partners 5. Carer support groups 6. Lecture series for carers 7. Concerts, movies, education Community
1. Monthly
2. Monthly
3. Monthly
4. 4 monthly every 1–2 years
5. Monthly
6. Quarterly
7. Random
Observational and Descriptively reported rather than using specific outcome measures. Graduates from 16 Memory Makers support programme groups Family units (n = 1,799) with people early dementia (n = 166; aged 49–93) and their care givers (n = 178). Resilience fostered through acceptance, disclosure, significant others, sense of purpose, routines, and familiar environments and memory aids, showing up/value of a support group, faith. Resilience is of critical importance to people with dementia regarding acceptance of diagnosis and adaptation to it and there is limited work completed to date as to how resilience can be strengthened.
Matchar and Gwyther (32)
USA
To explore the impact on resilience of an Alzheimer education and support group Memory Makers program
Structured Educational support group
People with dementia and Family Carers
2 Masters level Social Workers trained by Alzheimer's Association Early-Stage Group Facilitators Manual.
Structured Educational support group; with carer-people with dementia 5–12 dyads. 75 min of discussion separately and then dyads together on different topics weekly. Community
3 h weekly, for 8 weeks
Observational Descriptive
Evidence from 4 groups.
Open-ended evaluation surveys were emailed after intervention. Anecdotes from these combined with facilitator observations
People with early dementia and care partner dyads (n = 35) spouse 86% adult daughter 14% People with dementia expressed gratitude for care partner, perceived small victories sustained their resilience. Groups shared coping strategies, expressed hope, humor, living the best lives they could, reciprocal caring. Resilience benefits from sense of belonging to peer group.