Table 2.

Common Data Elements—Outcomes Measures with Classifications

Domain	Outcomes Measure	CDE Classificationa
Functional Outcomes	Nurick (Ambulatory Function) Grade8	2—Highly Rec.
	ASIA Motor Scale9	2—Highly Rec.
	Functional Status Karnofsky Score10	2
	Functional Status Lansky Score11	2
	ASIA Sensory Scale9	2
	Functional Independence Measure12	2
	Functional Independence Measure for Children (WeeFIM)12	2
	Modified Japanese Orthopaedic Association Score13	2
	McCormick Scale8,14	3
	Chicago Chiari Outcome Scale15,16	3
Emotional and Cognitive Status	Zung Depression Score13	3
Other Non-Motor	Assessment of Shunt Functionb	2, 3
Pain	McGill Pain Questionnaire17	2
	Brief Pain Inventory (Short Form)	2
	Numeric Rating Scale—Neck Pain13	2
Quality of Life	Headache Disability Index13	2—Highly Rec.
	Meaningful Improvement18	2—Highly Rec.
	Chiari Symptom Profile5	2
	EuroQoL-5 Dimension Questionnaire—Youth (EQ-5DY)13	2
	Health Transition Index13	2
	Neck Disability Index13	2
	PROMIS	2
	Neuro-QOL	2
	Short Form 36-Item Health Survey (SF-36)	2
	Short Form Health Survey-12	2
	The North American Spine Society Satisfaction Questionnaire13	2
	PROMIS—Pediatric	3
	Neuro-QOL—Pediatric Functional Health	3

^aCDEs classified as 2—Highly Rec. are not required, but highly recommended in CMI research; CDEs classified as 2 are not required, but relatively important to CMI research, depending on the framework of the study; and CDEs classified as 3 are novel concepts in CMI research that can be considered experimental or exploratory based on the current state of the literature.

^bIndividual data points included in the Assessment of Shunt Function tool may be classified as either 2 or 3, depending on the data point.