1. |
“Well, you see brutal fates in [specialized clinic]. I saw them myself when I was there. These young with tetraplegia. You know, that's a terrible thing. For this reason I always say, I'm one of the lucky ones. Of course, it is also terrible what I have. But in comparison to those I belong to the lucky disabled.” (T4) |
2. |
“I'll just read more. I like to read and then I can devour books again and see the positive out of it. It's not just negative, lying down (laugh).” (S4) |
3. |
“Or the motivation. What kind of attitude a person has towards his own body, how can I accept the paralysis, how do I handle the disability […] that certainly has a great influence, the love for your body and how carefully you treat your body.” (T1) |
4. |
“So I think you can influence a lot with your behavior, whether you get a pressure ulcer or not.” (T1) |
5. |
“And every time I went to [specialized clinic] I took the Roho [a type of cushion] because I knew that if they saw me sitting on the Jay [another type of cushion], they would say, “Yeah, why don’t you use the Roho?” But for me the Roho is not ok. So I have it and sometimes I use it too. I use it for a change. And then a little to train. But it did not get any better at all.” (S7) |
6. |
“I knew that he [a colleague] was in hospital for a pressure ulcer and I saw that he was using electrical stimulation, huh. And then I thought, let’s take a closer look at it. When I went to my physiotherapist, I told her that I wanted to do electrostimulation. She checked this option, organized the prescription and then I bought the machine. Since then, I’ve been doing electrostimulation too.” (T2) |
7. |
“Even with the sheep skins and stuff. For example, I don’t know anybody else who has sheep skins like that. These are all things that I found out and organized by myself.” (T3) |
8. |
“[…] with the clothes you can do a lot against pressure injuries. But I admit, it took me years to find out the right thing.” (T1) |
9. |
“Actually, if I would live alone, I’d make different decisions. I think if I’d decide myself, I would not lie. But here [assisted living facility] I have to be more careful.” (D3) |