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. 2018 Dec 17;43(2):223–233. doi: 10.1080/10790268.2018.1552643

Table 5. Summary of the issues and solutions identified for each domain as identified in the Summit meeting.

Domain – issues Solutions
1. Knowledge Translation and Dissemination
  • Challenge finding useful information on SCI that is primary care-based

  • Hard to meet learning requirements (specific issues related to primary care in SCI when it is needed i.e. point of practice)

  • Lack of primary care guidelines for SCI; limited awareness/ use of existing guidelines

  • Low priority knowledge requirement: low prevalence of SCI in individual practices competing against much more common conditions that PCPs must keep updated

  • Challenge to reaching PCPs who are inundated with practice guidelines and updates and have vastly different practice models

  • Lack of awareness of non-traumatic SCI (identification/management)

  • Consumers often educating PCP on their condition

  • Create an enabling network to create and share knowledge and work collaboratively to improve care

  • Coordinate and utilize expertise from effective existing knowledge mobilization groups; utilize methods that appeal to PCPs in various ways: online modules, case-based modules, point of care tools

  • Manage low volume/low prevalence conditions and competing interests in primary care by changing perspectives (increase importance by leveraging common conditions such as multiple sclerosis, stroke, amyotrophic lateral sclerosis), empowering consumers, and creating point-of-practice solutions

  • Enable consumer empowerment to inform/translate best practices

  • Raise awareness among PCPs about SCI including non-traumatic SCI and degenerative cervical myelopathy and explore opportunities for collaboration with specialists for education in primary care.

2. Application of Best Practices
  • Limited knowledge regarding SCI and secondary complications and preventative care issues related to SCI

  • Lack of standardized best practices

  • Limited awareness and accessibility of resources and guidelines

  • Establish evidence informed living guidelines to inform primary care best practices

  • Further develop and promote point of practice tools and an on-line repository for SCI resources for PCPs

  • Further develop Community of Practice (CoP) including all relevant stakeholders such as consumers, cross sector care providers

  • Foster knowledge empowerment through mentorship, development of CoP and strategies to make knowledge accessible.

  • Create an online repository of resources.

3. Communication
  • Lack of patient advocacy and empowerment

  • Everyone working in silos – very limited communication between sectors and services resulting in duplication of services

  • Geographic discrepancies can enhance communication gaps

  • Systemic remuneration deficiencies are barriers to communication and collaboration

  • Create an integrated health record to empower consumers with their health records

  • Utilize face to face and virtual appointments; further expand virtual outreach such as eConsult and PCVC

  • Engage SCI consumers to identify strategies to improve communication among PCP utilizing SCI consumer voice

  • Build a provider network to clarify system care pathways and roles and responsibilities for care

  • Lobby for equitable compensation to support care

4. Research
  • Limited funding

  • Difficulty identifying non-traumatic SCI

  • Limited access to information across services and sectors (different EMRs, lack of coding for SCI)

  • Lack of national strategy for SCI primary care

  • Inability to coordinate research, lack of primary care data

  • Low prevalence, lack of consumer involvement

  • Align funding to support care (e.g. decreasing UTI in community; understanding prevalence of SCI through EMR coding)

  • Use working group and SCI Consumer Advisory Committee to identify key priorities and leverage available funding opportunities

  • Examine economic implications of SCI and effects of practice changes

  • Identify key indicators or outcomes

  • Raise awareness among PCPs about SCI including non-traumatic SCI and degenerative cervical myelopathy and explore opportunities for collaboration with specialists for education

  • Expand the critical mass to further the impact of initiatives on a systemic level (i.e. leverage other conditions with similar barriers)

  • Engage with PCPs in the identification of persons with SCI in their practices to understand current care and promote use of tools

  • Analyze health system utilization by persons with SCI using population databases

  • Pilot a post graduate fellowship in family medicine focused on research and care of those with physical disability

  • Create access to front line data to better code and understand SCI in primary care; partner with key organizations to identify opportunities.