Table 2.
Thematic overview of content; Symptom and needs assessment in the InvolveMe tool
| Bodily symptoms | ||
|---|---|---|
| Common for both patient groups | NFPAa | RTXb |
| Pain | Menstruation | Breathlessness |
| Less interested in sex | irregularities | Swelling |
| Weakness | Hot flushes/night sweats | Itching |
| Dizziness | Erection changes | Bowel habit changes |
| Weight changes | Visual changes | Urinary habit changes |
| Fatigue | Coordination changes | Thirst |
| Sleeping problems | Balance changes | Nausea |
| Psychosocial challenges | ||
| Common for both patient groups | NFPA | RTX |
| Anxiety | Stress sensitivity increased | N/Ac |
| Depression | ||
| Mood disturbances/fluctuations | Irritability increased | |
| Memory problems | ||
| Concentration problems Lack of understanding (from | ||
| family/friends) | ||
| Lack of support (from family/friends) | ||
| Guilt towards children | ||
| Uncomfortable in social situations | ||
| Loneliness | ||
| The need for work related support | ||
| Common for both patient groups | NFPA | RTX |
| Work-related understanding | N/A | N/A |
| Work disability | ||
| The job exacerbates health | ||
| The need for information | ||
| Common for both patient groups | NFPA | RTX |
| Healthy diet | N/A | Infection prevention |
| Physical shape improvement | Skin/mole changes | |
| Alcohol | ||
| Smoking cessation | ||
| Medications side effects | ||
| Treatment options | ||
| Disease progression | ||
| Economic and social rights | ||
| Medication prescriptions and certificates | ||
aNFPA Non-functioning pituitary adenomas
bRTX Renal transplant recipients
cN/A Not Applicable