TABLE 1.
Demographic Characteristics of all RI-CART Study Participants
| Characteristic | Overall Group | Community Dx and Positive ADOS: ASD | Community Dx or Positive ADOS: ASD-Inclusive | Neither Community Dx nor Positive ADOS: Non-ASD |
|---|---|---|---|---|
| Participants, n | 1000a | 533 | 318 | 101 |
| Age, mean (SD), y | 13.62 (9.63) | 13.15 (9.02) | 13.97 (9.84) | 15.40 (11.80) |
| Sex, n (%) | ||||
| Male | 783 (78.3) | 429 (80.5) | 243 (76.4) | 68 (67.3) |
| Female | 217 (21.7) | 104 (19.5) | 75 (23.6) | 33 (32.7) |
| Ethnicity, n (%) | ||||
| Not Hispanic/Latino | 728 (72.8) | 429 (80.5) | 223 (70.1) | 71 (70.3) |
| Hispanic/Latino | 124 (12.4) | 70 (13.1) | 39 (12.3) | 14 (13.9) |
| Information not provided | 148 (14.8) | 34 (6.4) | 56 (17.6) | 16 (15.8) |
| Race, n (%) | ||||
| American Indian/Alaskan Native | 5 (0.5) | 2 (0.4) | 3 (0.9) | 0 (0.0) |
| Asian | 10 (1.0) | 6 (1.1) | 3 (0.9) | 1 (1.0) |
| Black or African American | 30 (3.0) | 22 (4.1) | 5 (1.6) | 3 (3.0) |
| White | 718 (71.8) | 424 (79.5) | 221 (69.5) | 67 (66.3) |
| Multiracial | 82 (8.2) | 46 (8.6) | 25 (7.9) | 11 (10.9) |
| Other | 20 (2.0) | 10 (1.9) | 6 (1.9) | 4 (4.0) |
| Information not provided | 135 (13.5) | 23 (4.3) | 55 (17.3) | 15 (14.9) |
| Community autism-related diagnosis, n (%) | ||||
| Autism | 189 (18.9) | 160 (30.0) | 29 (9.1) | 0 (0.0) |
| Asperger syndrome | 122 (12.2) | 91 (17.1) | 31 (9.7) | 0 (0.0) |
| PDD-NOS | 131 (13.1) | 98 (18.4) | 33 (10.4) | 0 (0.0) |
| ASD | 229 (22.9) | 184 (34.5) | 45 (14.2) | 0 (0.0) |
| No diagnosis | 189 (18.9) | 0 (0.0) | 109 (34.3) | 80 (79.2) |
| Unknown | 140 (14.0) | 0 (0.0) | 71 (22.4) | 21 (20.8) |
Abbreviations: ADOS, Autism Diagnostic Observation Schedule; ASD, autism spectrum disorder; Dx, diagnosis; PDD-NOS, pervasive developmental disorder-not otherwise specified; SD, standard deviation; y, years.
a
Neither an ADOS-2 nor a community diagnosis was available for 48 individuals in the registry. Therefore, these individuals were not included in any of the subgroups.