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. Author manuscript; available in PMC: 2021 Oct 1.
Published in final edited form as: J Empir Res Hum Res Ethics. 2019 Sep 9;15(4):271–278. doi: 10.1177/1556264619872640

Table 1.

Organizational Partners in the Center for the Ethics of Indigenous Genomic Research consortium

Collaborative Organizations Organization type Location & Alaska Native/American Indian (AN/AI) community represented Key features related to genomic research
University of Oklahoma Public research university Norman, Oklahoma- no specific AN/AI community • Laboratories for Molecular Anthropology & Human Microbiome Research
• Oklahoma Medical Research Foundation
• Native American Law Program Center for Applied Social Research
• Center for Risk & Crisis Management
• Native American Studies Program
• Current portfolio of microbiome research with AN/AI peoples
Chickasaw Nation’s Division of Research and Population Health Federally recognized tribal government Ada, Oklahoma- Chickasaw Nation’s jurisdictional territory includes 7,648 square miles of south-central Oklahoma and encompasses all or parts of 13 Oklahoma counties • Located within tribally managed research and health care systems
• Federally registered IRB
• Proposed genomic research proposals
Missouri Breaks Industries Research Incorporated AI owned business Eagle Butte, South Dakota- Cheyenne River Sioux Tribe of the Cheyenne River Reservation, Oglala Sioux Tribe, Rosebud Sioux Tribe of the Rosebud Indian Reservation, Spirit Lake Tribe, & Standing Rock Sioux Tribe of North & South Dakota • Strong Heart Study field center
• Development of biorepository
• Current portfolio of epigenetic research
Southcentral Foundation Cook Inlet Region, Inc. nonprofit health care organization Anchorage, Alaska- AN/AI people living in Anchorage & the Matanuska-Susitna Borough, 55 rural villages in the Indian Health Service Anchorage Service Unit, a geographical area stretching 107,400 square miles across Southcentral Alaska – extending from the Canadian border on the east to the Aleutian Chain and Pribilof Islands on the west. • Northwest Pharmacogenetics Network
• Current portfolio of ELSI and pharmacogenetic research
• Co-management of the Alaska Area Specimen Bank