Table 3. .
Participant demographics.
| All Patients n = 2720 (%)a | CNS n = 1686 (%)a | Non-CNS n = 1034 (%)a | |
|---|---|---|---|
| Age at RT Start | |||
| Median (range) in years | 9.6 (<1–21.9) | 9.4 (<1–21.9) | 10.0 (<1–21.9) |
| <5 Years | 586 (21.5) | 331 (19.6) | 255 (24.7) |
| >5 Years | 1704 (62.6) | 1085 (64.4) | 619 (59.9) |
| Gender | |||
| Male | 1524 (56.0) | 985 (58.4) | 539 (52.1) |
| Female | 1183 (43.5) | 696 (41.3) | 487 (47.1) |
| Race | |||
| White or Caucasian | 1897 (69.7) | 1182 (70.1) | 715 (69.1) |
| Black or African American | 187 (6.9) | 118 (7.0) | 69 (6.7) |
| Asian | 124 (4.6) | 83 (4.9) | 41 (4.0) |
| Arab/Middle Eastern | 31 (1.1) | 21 (1.3) | 10 (1.0) |
| Native American/Alaska Native | 10 (0.4) | 7 (0.4) | 3 (0.3) |
| Native Hawaiian or Other Pacific Islander | 9 (0.3) | 7 (0.4) | 2 (0.2) |
| Unknown or not reported | 295 (10.8) | 173 (10.3) | 122 (11.8) |
| Other | 132 (4.9) | 84 (5.0) | 48 (4.6) |
| Ethnicity | |||
| Hispanic or Latino | 291 (10.7) | 190 (11.3) | 101 (9.8) |
| Not Hispanic or Latino | 1898 (69.8) | 1183 (70.2) | 715 (69.1) |
| Unknown or not reported | 474 (17.4) | 281 (16.7) | 193 (18.7) |
| Residence | |||
| United States | 1892 (69.6) | 1201 (71.2) | 691 (66.9) |
| International | 507 (18.7) | 316 (18.7) | 191 (18.5) |
| Insurance | |||
| Covered | 1863 (68.5) | 1181 (70.0) | 682 (70.0) |
| Partial Coverage | 15 (<1) | 9 (<1) | 6 (<1) |
| Coverage Amount Unknown | 291 (10.7) | 167 (9.9) | 124 (12.0) |
| None | 67 (2.5) | 49 (2.9) | 18 (1.7) |
CNS, central nervous system; RT, radiation treatment.
a
Totals may not sum to 100% of cohort because of rounding, missing data fields, or data may not be inputted into the registry. A total of 2720 patients were enrolled at time of analysis. Unavailable data: Age 430/2720 (15.8%), gender 13/2720 (0.5%), race 79/2720 (2.9%), ethnicity 57/2720 (2.1%), insurance 484/2720 (17.8%), and residence 115/2720 (4.2%). Information on residency ineligible to be collected on 205 (7.5%) patients due to institutional IRB restrictions. Totals and percentages of race may exceed 100 due to multiple responses per patient.