Table 3.
International learning on building social participation in health systems, process reflections, and future adaptions. Adapted from [40]
International learning | Process reflections | Adaptations |
---|---|---|
1. Participation is both a means for health improvement and an end in itself based on values and rights | Broader understanding of forms, processes and contexts requires explicit reference to, and ultimately transfer of power towards, disadvantaged groups, and a focus on change processes developing community voice as a continuous process, situated within social and political environments | Framing in terms of social justice and citizenship may help to communicate key features of the process and what it seeks to achieve |
2. Community experience is a key entry point, and community activism and leadership are key drivers of participatory practice | Mobilisation activities related to participation and deliberation were possible to progress, and there was some evidence of individual acts of information sharing in the wider community | Enabling community experience and leadership, with less researcher control and more shared ownership should be incorporated into collective design decisions |
3. Participatory processes and social power in health are more likely to thrive when services go into community settings | All activities were conducted in accessible community spaces in which there were generally supportive attitudes. Community settings appear supportive and enabling of PAR | While institutional and political support is important, claimed spaces in which issues can be autonomously raised and framed are important to cultivate and maintain |
4. They are supported by and elicit more holistic models of health | Self-nominated priority topics, and facilitated participatory problematization clearly elicited holistic models of health | For acting on the evidence generated, a wider set of stakeholders should be engaged, beyond department of heath |
5. Informal and formal spaces and processes both play key roles. The synergies and links between them enrich both | Formal (e.g. clinic committees) and informal (e.g. VAPAR) structures exist for community participation in this setting | Interaction between claimed and invited participatory spaces will be sought and progressed |
6. Institutional and individual facilitators play a critical role | Sensitive facilitation was key to convey process, co-design, and power dimensions that enabled rich action-oriented interpretations of community nominated. Management of expectations important | Lift up and make explicit the key contribution of facilitation. Explore skills exchange for effective and respectful facilitation |
7. Sharing Information and participatory processes to gather, analyse, discuss and use community evidence in planning are necessary (but not sufficient) for meaningful social participation | The wider VAPAR process is geared towards cooperative action cooperation with health authorities in the province, district, sub-district and locally | A wider set of stakeholders beyond department of health, should be engaged to share, interpret, act on, and learn from community evidence |
8. Accessible processes for co-determination that link decisions to shared plans, actions and resources to act are central to meaningful participation | Careful consideration and appraisal of implications of proposed actions in cooperation with health systems stakeholders, and other government and non-governmental stakeholders, are necessary as process progresses | |
9. Deepening of participation takes a consistency of presence, time and capacities | The wider VAPAR programme supports this consistency | Attention to specifics of engagement over time, and beyond defined periods of engagement, is required with a focus on making implicit issues of presence, time and capacities explicit. Careful attention to issues of marginalisation and representation are required |
10. Learning from action (and evaluation) needs to track diverse forms of progress to build strategic review | Wider VAPAR programme enables the tracking of progress | Diverse forms of progress (and failure) require careful monitoring as the action elements progress |