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. 2019 Aug 21;34(3):387–402. doi: 10.1177/0269216319870647

Table 1.

Together for Short Lives categories.2

Category Description
1. Life-threatening conditions for which curative treatment may be feasible but can fail Access to palliative care services may be necessary when treatment fails or during an acute crisis, irrespective of the duration of threat to life. On reaching long-term remission or following successful curative treatment, there is no longer a need for palliative care services.
Examples: cancer, irreversible organ failures of heart, liver, kidney.
2. Conditions where premature death is inevitable There may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities.
Examples: cystic fibrosis, Duchenne muscular dystrophy.
3. Progressive conditions without curative treatment options Treatment is exclusively palliative and may commonly extend over many years.
Examples: batten disease, mucopolysaccharidoses.
4. Irreversible but non-progressive conditions causing severe disability, leading to susceptibility to impaired health. Children can have complex health care needs, a high risk of an unpredictable life-threatening event or episode, health complications and an increased likelihood of premature death.
Examples: severe cerebral palsy, multiple disabilities, such as following brain or spinal cord injury.