Table 1. Secondary outcomes.
Outcome (time window) | Tool (reference) | Range/categories used |
Disease activity (during the preceding 7 days) |
German Inflammatory Bowel Disease Activity Index (GIBDI) (17) |
0–18 |
Self-monitoring and insight (current) |
Health Education Impact Questionnaire (heiQ) (18, 19) |
1–4 |
Constructive attitudes (current) | Health Education Impact Questionnaire (heiQ) (18, 19) |
1–4 |
Emotional well-being (current) | Health Education Impact Questionnaire (heiQ) (18, 19) |
1–4 |
Psychological distress (during the preceding 2 weeks) |
Patient Health Questionnaire-4 (PHQ-4) (20) |
0–12 |
Vitality (past 7 days) |
Subscale Short Form 36 (SF-36) (21) | 0–100 |
Level of being informed about IBD (current) |
Individual item | 0–10 |
Health-related quality of life (current) |
EuroQuol Visual Analogue Scale (EQ-VAS) (22) | 0–100 |
Current state of health (compared to initial survey) |
Individual item | Much better/somewhat better/about as 12 months ago/somewhat worse/much worse |
Employment status (current) |
Individual item | Working yes = working full-time, part-time or marginally employed |
Days of incapacity for work (in the past 3 months) |
Individual item | 0–90 |
Subjective employment prognosis (current) |
Subjective prognostic employment (SPE) scale (23) |
Unfavorable prognosis: score ≥ 2 |
IBD, inflammatory bowel disease