eTable 6. Comparison of the MERCED sample with other IBD study samples.
| Characteristics |
PROCED (4) N = 514 |
CEDnetz (34) N = 349 |
PACED (32) N = 537 |
CEDreha (31) N = 250 |
MERCED N = 431 |
| Baseline data from the year … | 2011 | 2013 | 2011 | 2013 | 2017 |
| Recruitment via … | 1 HI | Spec. practices | Rehab clinic | Rehab clinic | 4 KK |
| Sex (female) | 55% | 60% | 66% | 61% | 57% |
| Age in years | 42 | 43 | 43 | 45 | 43 |
| School education (max. 9 years) | 13% | 21% | 22% | 17% | 12% |
| Working | 80% | 80% | 84% | 84% | 100% |
| Diagnosis (UC/CD/IC) | 50/50/0% | 44/52/3% | 48/50/2% | 51/47/2% | 45/54/2% |
| Disease duration in years | 12.9 | 12.4 | 12.6 | 12.1 | 14.0 |
| Course of disease during the preceeding years – After relapses now remission – Alternating relapse/remission – Constant/increasing activity |
30% 46% 24% |
39% 39% 22% |
11% 49% 40% |
20% 42% 38% |
13% 52% 36% |
| Use of biologic agents | 8% | 37% | 29% | 29% | 39% |
| No rehabilitation in the past 4 years | 82% | 83% | n .r. | 80% | 79% |
| Satisfaction with IBD care (0 –10) | 6.9 | 8.1 | n .r. | 6.6 | 6.3 |
| Limitation in social participation (IMET) | 18.7 | 20.6 | n .r. | 34.9 | 33.8 |
| Disease activity (GIBDI*) | 3.5 | 3.2 | 4.6 | 4.4 | 5.4 |
| Health-related quality of life (EQ-VAS) | 70.5 | 71.6 | n .r. | 60.7 | 60.0 |
| Negative employment prognosis in working people (SPE ≥ 2) | 29% | 25% | n .r. | 57% | 51% |
| Level of being informed (0–10) | 7.1 | 8.1 | n .r. | 6.6 | 6.7 |
IBD, inflammatory bowel disease; IC, indeterminate colitis; UC, ulcerative colitis; EQ-VAS, EuroQuol Visual Analogue Scale; Spec. practices, gastroenterological specialist practices;
GIBDI, German Inflammatory Bowel Disease Activity Index (*cannot be calculated for patients with stoma or indeterminate colitis); IMET, index for measuring restrictions of participation (“Index zur Messung von Einschränkungen der Teilhabe”); HI, health insurance; CD, Crohn’s disease; N, number; n .r., not recorded; SPE, subjective prognostic employment scale